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Excessive daytime sleepiness

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Kas
Excessive daytime sleepiness

Is anyone else coping with this? My husband falls asleep as soon as he sits down and then when he wakes or I wake him, he can become very confused. Consultant trying to improve his nightime sleep with melatonine to prevent daytime sleepiness but not working. He was diagnosed 9 years ago and is taking Stalevo TDS. I am so worried that this may be the start of Parkinson's dementia. He is often uncommunicative, then at other times he seems quite alert again. Up and down seems to b a feature of this horrid condition.

Kas

 

 

 

Moderation

Hi Kas,

We have information about sleep problems and Parkinson's here: http://bit.ly/23UaO2N

Please know you're also welcome to contact our helpline on 0808 800 0303. You'll be able to discuss all aspects of living with Parkinson's with our trained advisers (including Parkinson's nurses). Our helpline is open from Monday to Friday: 9am-7pm and on Saturday: 10am-2pm (Closed Sundays/Bank Holidays).

Best wishes,

Ilona (Moderation Team).

benji

Hi Kas.

 

You describe our situation exactly. Husband sleeps  for most of the day.As he is already a patient at our local memory clinic, I have the same worry as you do.

 

 

Kas

Hi Benji, 

Husband just recently been assessed by memory clinic. Don't really know where that will take us, but I was told there was a service for carer's too. Maybe helpful? 

benji

Hi Kas.

Has he been prescribed any medication yet or was that mentioned as a possibility? Husband has been  on Rivastigmine for almost a year now.

Kas

Benji, no medication prescribed yet. But he needs to see doctor at memory clinic, so maybe after that. Does it help your husband? Don't want anything else to make him sleepy! I find his personality change the hardest thing about PD

 

 

 

benji

I've covered more details in a PM to you Kas.

Kas

Benji,

I have tried twice to reply to your last PM and both times messages failed to send. I had a msg saying contact site administrator. Don't know how to do this, so for the moment I cannot get in touch with you. Very annoying! Hope care issues are resolving and I am thinking of you,

 Kas x

 

Joanne M Parkinson's UK

Hi Kas,

Sorry to hear that you're having issues with sending PMs on the site. If you send us a screen grab of the error message you're getting to [email protected] we can have a look.

Best wishes,

Joanne 

Kas

Hi Joanne,

i just did a test message to benji - ready to send you the error message and it was sent successfully!

i am pleased, but now I need to compose a proper message and hope it goes.

thanks for your help,

Kas

benji

Yes, Kas,

 

Your test PM arrived.

 

benji