I have posted before on the forum, about being unhappy with my meds. and lack of empathy from my neurologist and PD nurse. After extensive research and reading other people's advice, I have decided to take charge of my own body and listen to what it is telling me.
I was diagnosed with PD 3yrs. ago and put on 10mg. of Selegiline, but given Elderpryl by my surgery. This increased to another 5mg. to be taken in the afternoon. Eighteen months ago, Ropinirole XL was introduced and gradually built up to 12mg. a day. Sometimes it was RequipXL and sometimes SpirocoXL. The side effects, I suffered, were as bad as the disease itself. My neurologist suggested that I come off the slow release meds. gradually and see what happens.
Well, I have done all that and feel better and more in control, but my body is telling me I still need something to alleviate my PD symptoms, so I have decided to take Macuna Pruriens in tablet form. As I mentioned, I have done endless research into this and am going down this route with some trepidation. As I see it, there IS no cure for PD, so whatever meds. you are given will only relieve symptoms and as everyone reacts differently, there is no definite 'right' way to proceed.
My worry is, that when I see my PD nurse in a couple of weeks, she will disapprove of my actions and give me a hard time. How can I convince her that at least I want to give this a go?
I know many of you have used Macuna before and would welcome some advice please, on how you convinced your PD nurse and neurologist, to go along with this.