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Not dealing with this very well

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Gdubz

Hello to all on forum,my name is George, it's my 1st time posting i was finally diagnosed in august with pd but had symptoms for years i also have fybromyalgia which is a nightmare alone been so depressed lately and blood pressure has been high amongst every thing else, feel like a moaner sometimes.Thanks George

daffy

Hi George

PD on top of fibromyalgia. That's a tough one. Feel free to moan here, it helps lift the load a bit and someone usually replies. we're all in the same boat. I was diagnosed 2016. It takes quite a while to accept. There's loads of useful information on this site. Just pick&choose what you need. The freephone helpline is good too.

I seem to have had to make lots of small adjustments, and then some more. Some days are better than others but the key seems to be to keep as active as reasonably possible. I found it helped to get out and about a bit too. Even though I'm fortunate in that I live with my husband, I still found just a word or two with someone outside the home made a difference to my mood.

D

Gdubz

Good  Morning D

Thanks for your reply, i do try get out but  fibro cripples me some days .I am on ropinirole for my pd but i think its raising my bp how are you with pd?.

George

Mabelsmum

Sorry to hear you’re having a tough time George. I don’t have parkys, my husband does and my mum and brother in law did have it. They were all different. There is a programme in parts of the uk called first steps to help newly diagnosed people. It’s only in a few places, oxford has it but it’s defnitely worth seeing if it’s near you. The first steps programme is part of the protocol used by the European Parkinson’s therapy centre in Italy which focuses on 4 pillars of Parkinson’s - medication, lifestyle, exercise and psychology. It’s a very very good place to go to if you can. It’s educating and empowering and made a big difference to us both. Families are encouraged to get involved. There are some videos on their Facebook page that might help you now. Stay strong, for us Parkinson’s gets in the way sometimes but mostly it doesn’t stop us, we have to find a way around the problems and go for it anyway! Over 9 years we have learned the avoid stress, talk and exercise exercise exercise!  Colour your life x

hope that helps

daffy

Hi George

I have right side hand, arm & leg tremor. Sometimes more than others. Stress exacerbates it. I also have a few other symptoms that I didn't initially realise were PD. (anxiety at times, constipation, fatigue...)

After a while I realised that knowing the cause of these other symptoms made it easier to deal with in that I stopped looking for the cause of them - if you know what I mean. I have slowed down a bit but some of that could be because I'm 64!

I take sinemet, which works ok for me. I have found it's really important mentally as well as physically to do some exercise and get out and about a bit - when you can. I realise you have added problems but it does make a difference. On bad days ease off, on good days do a bit more - but not so much it wrecks you for the next day! Bit of a balancing act.

D

Gdubz

Hi Daffy,

Hope your well ,sorry only just getting back ,i have same right side i have been busy last few days been sorting out getting bungalow stairs in house becoming nightmare had 2 near misses with falling yesterday leg did not want to move.

George

 

 

 

daffy

Hi George

My mistake. I should have said it's my left side that's affected. It must be even more difficult when it's the right.

Sorry to hear about the near falls. There seems to be a lot of readjustments to make when living with PD.

Hope you can get bungalow sorted soon.

Daffy

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