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A Happy New Year to everyone
My problem at present is I do not know who my PD nurse is as the one I had has moved on and my PD specialist has retired.
A Plus side I found a drop in centre locally and they are a great bunch of people. Mainly Parkinson sufferers and some carers. I have started writing again and am trying to write a book.
Turnip keep fighting the urge.
Its been a long time since i contacted the forum.
I have a new Parkinsons nurse but i still dont have a specialist.
I have got worse Tremors and body twitching,fast to anger especially with family members
The buying impulse is still under control
Turnip i hope you are still fighting the urge
Due to taking a DA (Ropinirole) I have racked up a significant debt on my credit card due to compulsive spending. My weakness is for grooming/shaving products and was spending hundreds on expensive shaving soaps, creams and safety razors. I managed to curb this by:
1) Speaking to my Neurologist who stopped the DA.
2) Recognising that this was as a result of the Meds and was potentially destructive.
3) Growing a beard!
This is always a bad subject for me as if I had not finally had my eyes opened I would be alone, the reason, obsessive compulsive behaviour, like you sir I built and dismantled a huge model railway in my loft and purchased 10 Locomotives in one day plus hundreds of all types of rolling stock, at the same time, I was buying 1/50 scale die cast trucks buses construction eqpt , and these not being the same scale as the oo size used on my layout so I was purchasing to feed both scales, at the last count over £2.250 s worth, oh and im forgetting the £984s worth of die cast 1/72, 1/48/ 1/24 scale aircraft,, then add on about 150 unmade plastic kits of many scales, about £400 there, not forgetting my whiskey collection £ 1.200 or so at this point I gave up doing the audit but theres a lot of stuff, then the worst part of this horrible affliction hypersexuality, now I dont claim to be a angel, re sex, when I was normal once a week or twice even and we were both happy, my dear wife thought all her birthdays had arrived at once when the drugs began to warp my mind from once a week to three times or four even per night became the norm, then came experimenting, god we tried everything I became so skilled through experimenting we started down a route I really wish we had not, first it was a trusted mate, and when my wife began to grow weary of all this hyperactivity I did not and well if you can imagine then x 10 that would be near enough, so spoke to my PD Specialist and a drug change was carried out then virtually over night I reverted to type,, which I was fine with but my wife was not ,,well I did not know how things were going to pan out at that time, guys were visiting and things happened im not proud of, but finally stability returned although I am plagued with jealousy a pointless stupid emotion and it has caused a few problems I can tell you, though the more stable we are the less the silly jealousy is occuring, so it would seems we are through the worst I hope.
So please please go tel your nurse or Prof, tell someone you do not want to lose everything as I almost did.
Best wishes FED4
SHOULD ADD that the hyper thing has been a bit bothersome of recent, but my L ady is past that marker now , so from norm to hyper to norm to zilch sad eh, such is the wreckage parky and the drugs to fight it can bring down upon us, take care.
Thank you for the reply, it's always comforting and reassuring to know that you're not the only one and that others know exactly where you're coming from.
Unfortunately for me, I did lose everything dear to me - My home, wife, stepdaughter and cats and not to mention my money and possessions. Apart from the spending, I developed hypersexuality and indulged my insatiable appetite elsewhere. The deception, lies and cunning were so out of character for me, to me I felt invincible, like nothing could touch me and that what I was doing was somehow right and justified. Not surprisingly and deservedly, my wife threw me out over a year ago and started divorce proceedings, there were chances of a reconciliation but my DA distorted behaviour and perception put paid to that.
When my Decree Nisi came through in May, this coincided with my Consultant stopping the DA. Within a week, the old me returned and since then I have been plagued by guilt and remorse over what I have lost. I cannot forgive myself for what I have done - we were only married for seven months but the DA's messing with my head destroyed everything. Why is it with PD that the meds are often worse than the condition?
Well what can I say, sorry just wont cover it will it, I could so easily have been there with you in the same hell of losing everything you care about, but I am so so sorry not just for you but your poor wife and family also who winessed your plummet to destruction , there is the argument of well it serves you right, I used to say if you dont stop your going to lose her if you read some of my other posts you will see what I mean, if I had lost her I would last about a week, then it would be the next dimension for old FED. And I mean that as here would be no reason to hang around, I wish I could help you but no one can only you can attempt to rebuild, I wish you all the good things sir, you will need them
I've taken some positive steps to beat the spending. I have destroyed my credit card and have consolidated my overdraft and credit card debt into a 2 year loan which is affordable and more importantly is at a much much lower interest rate which means I will save hundreds by not having to incur interest at the previous rates.