Neuro LTC: Assessing factors and events that influence care needs

They are hoping to find out what events can lead to a sudden increase in care needs for people living with long term conditions. They are also interested in the effect fatigue has on people.  


The researchers would like to hear from people with Parkinson’s and carers (including people who were previously carers). 


Completing a 2-part survey, either online, on paper or over the phone.

The survey is divided into two parts – one about the factors and events that influence care needs, and one about the impact of fatigue. You can either complete both parts at the same time or separately at different times. Each part takes 15–20 minutes.

For more information:

visit the website, where you can also download the information sheets.   

To take part in the research please go to:

Funded by

Engineering and Physical Sciences Research Council


  • Care and services
  • Questionnaires