Campaigners meet to share, inspire and plan future activities

On 16 June 2021 volunteers and campaigners across the UK came together to celebrate, learn and plan our next campaign.

Our online conference opened with Local Campaign Officers Jack Grant and Georgina Sait sharing successes from the last year including:

  • our Get it on Time petition hand in event
  • news of 11 hospital trusts who have committed to implementing mandatory  training for staff on Parkinson’s and the 17 more who are reviewing their medication management policies 
  • their work successfully campaigning for nurse posts in Shropshire and Lincolnshire. 

Jack and Georgina paid tribute to our amazing volunteers who have made sure the voice of people with Parkinson’s has been heard by decision makers by writing to them, meeting them, signing petitions and organising protests.

Guest speakers

We invited Vice Chair for External Affairs at the Royal College of GPs, and Cambridge and Peterborough Clinical Commissioning Group Chair Dr Gary Howsam and Head of Policy and Campaigns at Motor Neurone Disease Association, Susie Rabin. 

Our guest speakers shared their experiences about how patients and campaigners could be more involved in decisions about their care. In a lively question and answer session attendees asked about access to multidisciplinary care teams, exercise prescriptions and mandatory training for health professionals on Parkinson’s.

Planning our future activities

The final session saw campaigners share  headlines they wanted to see in a year’s time after our post pandemic campaign to improve health and care services. 

We heard some great ideas about the use of technology, engaging politicians with real examples of what is and isn't working and about collaborating with other neuro charities to campaign for better services. 

We’ll be uploading a recording of the event if you missed it.

Get involved

One of our volunteers said: “Thanks for including me in the session yesterday which I thought was a really interesting and useful meeting. I look forward to the next step.”

If you’d like to get more involved in our campaigns please join our Campaigns Network. If you’d like to become a Campaigns Volunteer you can find out more here.

Have you been inspired by a campaigns volunteer?

Do you know amazing volunteers campaigning to improve the lives of people with Parkinson's and those caring for them? Nominate them for a volunteer award. Nominations close August 31