Today we launched a new resource that aims to help Parkinson’s researchers involve people affected with the condition in all stages of their research.
We believe that involving the perspective of people affected by Parkinson’s produces higher quality, more relevant research, and ensures that the benefits are felt by the people who need it most.
Over the past 10 years we’ve seen a shift towards researchers working in partnership with people affected by health conditions such as Parkinson’s, rather than doing research to or on them. This partnership can help at all stages of research – in the planning, design, management, evaluation and dissemination of findings.
That’s why over the past year we've been working hard to improve the support we provide for Parkinson’s researchers to work alongside people affected by Parkinson’s.
- what is Patient and Public Involvement?
- methods of involvement, in both clinical and basic research
- how Parkinson’s UK can support involvement in research
- case study examples
- ensuring PPI is meaningful
Producing the best research possible
Isabelle Abbey-Vital, Research Involvement Officer at Parkinson’s UK, comments:
“Research into health conditions can only move forward with interaction from those affected by the condition. This interaction is not limited to simply taking part. Involvement requires two-way communication with researchers. This is essential to produce the best research possible.
“As one of the first resources of its kind, we’re really proud of it. We hope it will be shared with many research communities, and that other organisations will find it useful to develop their own guidance.”