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Possible diagnosis

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Portster1987
Possible diagnosis

Hi all,

I'm 30 next month and have been referred by my GP to the Neurology team at my local hospital - appt is 27th October. 

I feel like I'm far too young to have Parkinsons but my symptoms are fitting and from what I have read it is entirely possible at a young age. I first noticed an issue about 6 months ago when I went for a run and my right leg was scuffing and I realised my knee wasn't lifting. A few days later I noticed as I was walking that the arm on the same side was not swinging as I walked. 

The past few weeks using a keyboard has been more difficult as my right hand is so slow and I notice I lean to the weaker side when standing and find it difficult to stand upright. 

I was diagnosed with depression and anxiety a couple of years ago and have had little success with medication which makes me think that it is possibly down to something along the lines of Parkinson's.

Has anyone else had a similar situation with depression and anxiety having seemingly come first before noticing physical symptoms?

Wildrover

Hi Portster1987, I am 50 and was diagnosed around a month ago. My physical symptoms started around 12 months ago. However I have had a couple of bouts of anxiety and depression over the last 2 or 3 years. The first time i didn’t go on any medication and just put it down to burn out at work. The second time i tried anti depressants but didnt last long on them as they made me feel worse. Both occasions were really out of character for me as I am normally quite a strong person and losing it was just not in my nature..... All makes sense now since my diagnosis.

Portster1987

HI Wildrover,

Sorry for the delay in responding, but thanks for getting back to me. 

It is interesting you felt siilar symptoms to me for a couple of years, and I agree with it feeling out of character!

Hopefully it all comes to light at the neurologist appointment as I never felt depression and anxiety were a primary symptom but part of something bigger. 

Only got 4 weeks to go now but I'm sure that they'll go by at a snail's pace :)

Wildrover

The Neurologist will more than likely order a DATScan so you will have another wait after that...

J of Grey Cottage

Hi, Portster 1987 --

Try not to worry during your four-week wait.  The medications for PD (if that is your final diagnosis) are very effective for most people.  Although I didn't experience depression, I had the lack of arm swing, awkward gait, and typical poor posture prior to taking any meds.  My right side, particularly my hand, could not keep up with my left side in anything.  When I washed my hands, the left hand did all the work.  When I played the piano, the melody disappeared.

But for over 20 years now I have been taking PD medications, and people who meet me usually do not guess I have any disability.  If you find the right combination of pills, most of the symptoms can be counteracted, at least for a time.  Although I am aware of my illness every day, it has not changed my life in a very big way.

Good luck with your appointment.

J

Portster1987

HI J, 

 

Thank you for your comment. I can most definitely relate to the hand washing, I figured it was just that my left side is my dominant side anyway but the right hand literally sits there static when I wash my hands. How peculiar! 

Portster1987

most likely! Id rather they were thorough in their investigations though and so I suppose I'll have to deal with the additional waiting.

salsaboy

Hi. Some of your physical symptoms sound very similar to mine though it affected my dominant right hand, badly affecting my keyboarding and writing, for example. Medication has helped a lot, including my mood too.

For non-drugs help with anxiety, have you tried one of the NHS talking therapies services available in many areas? I think you can self-refer. They provide practical, straightforward ways of dealing with anxiety.

If your diagnosis is Parkinson's, there's a chance you might be find yourself a little overwhelmed and get anxious if you chase up all the potential sources of advice, support, forums, current research, Facebook groups, etc. I'd suggest focusing on just a few things at a time, though I know that's not easy if you're anxious.

Everyone's needs and experiences are different, but I have found that joining one of the PUK working age/early onset groups to meet people facing similar challenges, and starting a daily exercise programme devised by a neurophysiotherapist, have been very beneficial; if it becomes available in your area, I'd highly recommend getting on the First Steps programme.

Good luck!

Rosiecrunch

Hi protester. I am 68 been diagnosed a year but pretty sure have had pd about 4years. same as you regarding the anxiety and depression, seems the standard response to most things. Lack of swing in the right arm, generally feeling pretty lousy.Medication has helped. Hope it helps you too. X

Rosiecrunch

Hello J. I love reading your posts you always sound so positive. I have been diagnosed a year but think have had pd for about 4 years. Only on 3 times a day co_cardlopa. Could feel better but could feel worse. Wish I could get the old me back and feel normal again. Sorry to moan x

J of Grey Cottage

Hi, Rosiecrunch --

I am always glad to hear that someone has benefited from my posts.  My luck in the slow advance of my case of PD is almost unbelievable.  The only advice I can offer is to get exercise, stay as positive as you can, and experiment until you find the right combination of meds for you.

Best wishes,

J

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