Has anyone had any problems with their eyes closing.Some days my left eye constantly closes and people keep saying what have you done to your eye. I spoke with my neurologist who said it is part of parkinsons as my brain is telling my eye to close. He also said that he would only do something (which I dont know what) If. my other eye started closing.
could anyone tell me if they experience this.
Cheers Barbara x
my husband had this problem, usually towards the end of the day or as we were sitting down to eat. it affected both eyes, so he couldn't see anything. it is apparently quite common. two remedies were suggested. one was some special form of clip attached to his glasses - which was ruled out as unsuitable by the eye specialists - or botox.
he has been having three-monthly botox treatments at the hospital eye clinic for the past 18 months - the actual process takes about 10 minutes - and it has almost eliminated the problem. to my mind it is one of the most effective treatments he has had, for anything to do with his parkinson's.
there are downsides, of course. one is dry-eyes, and he has all sorts of drops, sprays and ointments for this. some people apparently do not tolerate the botox as well as he has, and it can affect the way your eyes look, as botox does. also, the effect starts to wear off by the end of 3 months and, at least here, there is only one clinic a month, so if you miss your slot for whatever reason, your eyes start shutting again before the next treatment. but so far, so good. to be recommended.
Hi thanks so much for your reply and very interesting to read.Was your husband referred to the eye hospital.
Hope your husband keeps well.x
Hi
Thats both of my eyes closing. Have phoned parkinsons nurse who said she will email neurologist.
Hopefully get something done soon as very embarrasing,
Has no one else experienced this.?
i have also been waiting months for speach therapist.!!!
While im complaining i have bee trying to contact my PD advisor. Keep phoning and leaving messages to no avail. Dont know what to do now!!! So many questions i want to ask!!!
moaning Barbara x
Hi Glasgow Girl,
I have been bothered recently with my right eye closing,I thought it was maybe stress related but now not sure.
I have been diagnosed for 5 years and my right side is my worst side.
Will be interesting to see what your neurologist says,I am due to see mine in September.
Hope you get answers soon Glasgow Girl.
Cheers Anne
Hi Anne
i will let you know how i get on.
Nice to hear from you.
Take Care Barbara x
My eyes can't be persuaded to open for up to ten minutes when I wake . especially the parkie side. It hasn't got worse over the year so that's some comfort. I am on the books for botox if it got to be more troublesome.
I often fall asleep sitting on the side of the bed waiting for my eyelids to cooperate and last week woke to find myself hurtling towards the floor.
Hello Glasgow Girl
I used to drive a truck artic to and fro Newcastle to Glasgow delivering wll you name it ive hauled it in and out of Glasgow, well I have not carried a live 56megaton nuclear bomb, which I would not be happy about, though it was on one of the trips I noticed I could not keep my left eye open, it was one of many goingrongthings, I was noticing my eye the little finger on my left hand twittered constantly, ( I have a 262IQ Little finga) its still twitters , I could not clean my teeth fasten buttons tie shoelaces etc etc etc etc etc etc oh flip ANYWAY I was dxd with PD THAT WAS in 1998/9,
The very kindest regards Scottish Lassie FED4
OH I DID EDINBURGH ALSO
he was referred by his neurologist to the eye clinic at the same hospital. there was a wait, but not too bad.
Hi all of you who repled to my post post.
A big thank you.
I have been to my appointment to see my parkinsons nurse.
She phoned round to see if my neurologist was available.
He came to see me and spoke with me about my eyes.He gave me three botox injections around my eyes.
I have got up this morning and I am not constantly closing my eyes. Brilliant cant believe Its all fixed.
Go back in four months for more injections.
I SEE FOLKS WITH THEIR HEAD UPSIDE DOWN, THIS IS NOT NICE THEY HAVE TO BE 5YDS OR MORE AWAY FROM ME , I THINK THIS IS BRAIN RATHER THAN EYES, ALSO MY LEFT EYE IS ALMOST CLOSED FOR A FEW HRS OR MORE RIGHT NO ITS OK
WORRIED (ABIT) FED4
have eye problem double vision sometimes even treble ! great when counting pension .had parkinsons 12 yrs + .anyone else same symptom?
What a relief for you Glasgow Girl. They really ought to have some sort of emergency system for anything as alarming as you have had.. even though most PD symptoms creep up. I get day long bouts of dyskinesia - not particularly dose related which leave me very distressed and often with muscle strain in my ribs. When it is that happening I want help now not five days' time. I don't think the PD nurse got it bu ta call to the secretary of my neuro gfot me an appointment and after a year or more, something else is being tried whereas before I felt left high and dry.
Mysteriously my problem with opening eyes first thing has gone as suddenly as it came with no chjange of meds. I was on the verge of botox butt had put it off.as the specialist seemed to have developed cold feet about the whole thing.
I haven't been on here for some time. I don't k know how long the new style website has been on the go but I must say it is a vast improvement on the previous one/
Hi thanks for your reply and hope everything has been sorted out for you.
Surprisingly the fast shut eye as per previous post has got better as mysteriously and suddenly as it arrived.
