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REM sleep disorder

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jazzman
REM sleep disorder

Hi folks,

Havn't been on the forum for a while so its interesting to see just how many of the topics I relate to. Mostly the non motor symptoms which, maybe pretty insignificant on their own, but collectively add up to a pretty miserable time!

One of the main ones for me is RBD. I wake 3 or 4 times a night in the middle of what I can only describe as the mother of all nightmares. These nightmares are vile,violent and very, very scary. I leap out of bed and run screaming,or shouting and only wake up when I collide with the bedroom door or wall.

For someone who has difficulty walking I move awfully fast!

I can, unfortunately remember every detail of the dream and it takes an hour or so to pluck up the courage to go back to bed,hence the time of this post.

Am on 1mg clonazepam and 10mg of circadin but they don't seem to be doing the trick.

I am so tired in the day that I just cannot function.Have got an appointment with the neuro guy tomorrow, but I just needed get this off my chest,it's really affecting my quality of life.

Sorry for going on so long but anyone elses experience would help.Thanks folks

jazzman 

anonymous

 

HI

I have had them a few yrs before i was aware i was unwell, initially they were there everytime i closed my eyes i thought i must be going mad at the time these dreams replaying all the time, I also would bite my tongue in my dreams as i thrashed about throwing myself out of bed, I was dreaming i was falling down the stairs, trying to catch myself from falling.

I declined the pills as I read about the groggy effect  I suffer enough from fatigue without adding a side effect of the pills or more pills, My Dentist has been very helpful by putting a bridge in which has altered my bite and a gum shield so the biting is less

Afraid i dont have a answer for the dreams themselves

 

 

 

 

Kendo

Do you take dopamine agonists or levadopa?

Both are linked to Vivid dreams with DAs being more likely to cause this and the slow release versions of both being more likely to make vivid dreams worse.

The root cause is PD itself as the lack of properly controlled autonomous dopamine levels not only makes desired movement difficult, it affects the body's mobility "pause" control while asleep. You either wake up and can't stay asleep or sleep and can't stop moving.

Parkinson's really is an $#%*hole of a condition.

DivineR
(No subject)
jazzman

Yeah I take madopar, I know it can make dreams more vivid, that would be great if they were nice dreams but they are horrific. Also I 'fly' out of bed and hit the walls running! My neuro has put the clonazapam up to 2mg but admitted after I get used to that there is nowhere else to go. She said after that she would have to '' get creative '' you are right it is an @hole of a condition people (including docs) just don't get how debilitating and depressing it can be 

cjquilter

My husband has sleep related 'seizure like" episodes. He goes rigid, and has stiff involuntary movements. Absolutely scary to watch, He is incapable of responding when having one. He does regain consciousness somewhat, but it is like coping with a drunk . He insists on getting up, but his muscles are like jelly, so I am trying to hold up 6' 5" usually in middle of night. Not good. After he has no recollection of any of it, and tends to 'lose' memory of about 12 hours. He has actually answered questions from medical staff, been to hospital and been very lucid, and has no recollections of it the next day.

Anyone else have this?

FEDEXLIKE4

cryes 

  I  have the most horrible night terrors imaginable, my wife and I  have  not slept together  for 8 to 10 years as  the  monsters I FIGHT IN MY SLEEP   well it was my  beloved  who took the blows, this has been  worsening for the last 14 yrs  and will  adopt a theme which will  last  months then  another will  crop  up, I cant even  begin to  tell you the  horrible  terrible  ordeal I go  through every  night but  I can  tell  you  it has  brought  me  to  the  edge of  massive  break  down  many  many  times,  and  as  for  drugs well  ive  tried  everythiing  no  good I  just  have  to  endure  ,,  as I  have  to  endure  parky  through  the  day  along     with  te  pain  from the two  prolapsed  disccs  agony  day  agony  night  its  taking  away  the  fight though  through  sheer  spite like a wolfs  bite I make my  mark on  the  enemy  oh  yes im  not leaving any  time  soon I still have  a  lot of  figt  in  me,  as  you  shall  see  presentlymad

FEDEXLIKE4

OH THERES JUST BEEN A SMALL  HORSE  RUN  THROUGH THE WALL  TO MY LEFT, 

 ODD EH                   FED4

Shado1980

It is so reassuring and an immense source of consolation that others suffer the way I do with the added bonus of REM Sleep Disorder on top of the PD.

At first, it was shouting out in my sleep.  Usually they included the liberal use of profanity,  then the blood curdling shrieks started and the lashing out wildly.  On one occasion I punched my ex wife in the face,  I was dreaming that a pigeon was flapping around my face and annoying me so I done what anyone would in that situation and punch the blighter!

The dreams would become increasingly vivid and I was able to recall every detail on waking.  The most spectacular and humourous was me dreaming that I was a Spitfire pilot during the Battle of Britain.  My flight had just taken off at sunrise from Hawkinge for a dawn patrol over the channel.  I can recall vividly the excited radio chatter as we broke through cloud cover to emerge into a most glorious sunrise.   Then I spotted a formation of inbound bandits - Dorniers by the look of them.  "Tally ho! Bandits three o'clock low...."  I shouted.  We broke formation and dived down to engage.  I was lining up a bomber in my sights and watched as it got bigger in my cross hairs.  As I was about to squeeze the trigger, my plane shook as cannon shells thudded into my engine promptly splattering oil over the canopy which was soon following by flames in the cockpit.  I screamed "I'm hit, I'm hit.... I'm burning, help me for Christ's sake..."  I flapped my arms wildly trying to put out the flames and then I tried in vain to open the canopy but it was stuck....  I punched upwards frantically, screaming in terror at the thought of being burnt alive.    At last the canopy slid back and I threw myself out of the plane and pulled the ripcord to release my parachute.  At that point I woke up on the floor, flat on my back with one foot caught in the duvet and my ex wife peering over asking me if I was ok.

Terrifying dreams are a regular occurrence and usually lead to shrieking, lashing out or falling out of bed.

I have recently started sleepwalking despite being prescribed Clonazepam 1mg and I am seriously scared that one day I am going to injure myself or someone else.

SipsinCider

Hi, I have REM sleep disorder.

I had it for 3 or 4 years before I mentioned it to a doctor. During the undiagnosed period I had broken toes kicking out and hitting chest of draws beside my bed given my (still) wife numerous punches and kicks or the year's including black eyes! 

It was diagnosed when I visited a neurologist due to memory problems. The outcome was PD, REM behaviour disorder and LBD. I am currently talking 1mg of Clonazepam for the REM and I have to say they have helped. 

Can't really say I am looking forward to what the future holds.

sips

FEDEXLIKE4

Hello sips

                   Yes I used to think how nice it would be to win the lotto and buy  my  children lovely  homes make sure all the  friends who have  stuck  by  me through  most  horrible  times,   make sure  they  will  never  want,  there  was  a  lady on  local  tv  last  night and she is  having  to  sell  her  home  to  buy  cancer  treatment  , I would  buy  her  treatment,  and  help  as  many  genuine  cases as  possible,  now  my  only  wish , my  only  dream  is  the  news  that  a  cure  for  black  heart   is  found  soon,  oh I have  no  doubt a  cure will  be  found, when im 95, crippled dimentiarised and a bloke from  the   Euro Millions is  trying to take my picture holding a cheque  for £189.000.000, while im muttering  (sounds like clucking bell under my breath) or ducks off, in  reference to  a mr  fawlty in  farty  towels, it  gets you  that  way does  parky, if  you let it, and believe me  I let it ,  more  often  now  than  ever,  but I always  always  have  the  last  word,  and thats   ,,,,,, off  parky   beat  you  again ya  boo  sucks.

                                                FED4

    

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