lately many friends of mine with PD have been suffering from excessive hallucinations and delusions.One friend goes in and out of beliving people who are not there are there with plans.
The other two friends have lost their marriages and have similar problems.
This week I met another who was severely affected.he does have LDM PD.
I also know quite a few very advanced with PD yet their minds are clear with little of these dreadful symptoms.I can only think these friends who suffer are over medicated.Ive told them the answer is cutting back till the mind clears and start from there..My own care or drug doses has been left to me and Im doing great.lol
having PD is one thing but losing our mental faculties should be kept to a minunium.
Yes sir everything in your post I am dealing with at this very moment, I often see rats well a burry sort of rats all in my peripheraI know thats not how you spell I that but its the least of my worries mate,, severe depression which almost takes away the last ounce of strength , but doesnt because its my body and no mate of BLACKHEART going to shut me down no way, I use cognitive behaviour therapy or the art of spotting trouble before it hits, which strangely enough I use more in my dreams than awake, odd isnt it John but you know the human brain can outsmart all the worlds computers no probs but when it starts taking hits as severe as parky well summmits got to give, ,ive been there and crawled and I mean crawled on my hands and knees to the toilet and back to bed, not once but hundreds of times so its no going back now mate onward this war wont end until let it.
I often awake after one and soon the depression follows.But now I spot it as a result of a dreary dream I might have had.Thank God just a dream I say.I know I have a escape vessel and for me it"s getting up out of bed,for now it works and I waste no time thinking of the day it won't.
I had a friend who had PD extrme.he passed last year so I know how bad it can be.
have you ever tried music to help you?It does alot for me .
I think i foud the cause of my jerky movements.I was taking c/l from Actavis.I ran out so i used a prescription made by Mylan pharm.It took a week but my jerky movements have greatly improved and also less dystonia.A doctor friend told me the Actavis brand was made in China.Its been three weeks now I will see if it continues.
Last year, I was prescribed Selegiline. I feel more positive, there is less fog, I try new things. It's good stuff. My PD nurse reports that other people do well with it.
I take no PD meds. No meds but ibuprophen and now it is beginning to affect my hearing! I have had hallucinations, bad dreams, SEVERE sundowners. Depression i have had for 60 years but it worsens at times. So mine, was not meds, that makes me think it is PD. I have made serious changes in our marriage = faaaaar less stress and all the above has improved greatly: no hallucinations, unless the feeling of bugs crawling on me is that; no bad dreams, no sundowners PRAISE GOD (anyone who has had that doesn't want to live long enough for another one!) Yes, I still have depression but that too has improved. My mental faculties take some time off occasisonly but so far they have returned to normal. It is something that others need to overlook in me and I refuse to stress about it. I don't take meds because I have reactions to what i have tried. I did take a pill for the sundowners, to knock me out for a few hours and then it would have passed. That was all the doctor knew to do and I loved it! So was it stress or PD or both, I don't know. But I sympathise with all you have this horrendous devil.
Im always rrying to find more parkies especially in assited living or NH.I find often people get the wrong doctor who knows little on PD and that is why they end up in a home.The worst cases I have met physical symptoms the people never had to move into a home and died at home.
I wish more would be done about people becoming far more disabled by poor care not by PD itself
Hi, sorry your friends are suffering with this. My husband who is 63 was diagnosed at 39 and last year he was experiencing terrible hallucinations! Really scary for him and myself(full time carer). His consultant then had to withdraw some of his meds, Amantadine, Pramapexole, as it was the long term use of these which causes this trouble. Touch wood, he is much better, obviously not so mobile now with lack of drugs but I would rather him be mentally stable. Sue.
