Hi all,
I am new to this forum but have done some reading and seems like lots of us struggle with support and getting passed between specialist/gp/nurse/on and round. Although we are getting lots of input - physio, SALT, nurse etc, my father in law's both physical and mental condition (in terms of giving up) is deteriorating fast.( And we often get contradictory advice between the services.) The only explanation we can draw is that he must have had PD much longer than the 2 years since diagnosis as already he has difficulty swallowing, walking and extreme bowel issues. He's lived on his own for a number of years which could I guess explain how it was hidden / passed over.
Anyhow, we have come to a point where we are considering respite. He's so down in himself and struggling with day to day activities, we are unsure if he's always eating / drinking regularly / taking meds correctly. Me and my husband are always popping round (its an hour away!) and on the phone but feel like a consolidated bit of care and company might give him a physical / mental boost or otherwise confirm that we need to consider something more permanent in terms of care.
Having gone through respite and care with my mother with dementia, I'm struggling to find parkinsons specialist care homes or any advice on how to narrow this down.
Does anyone have any advice/experiences to share?
My husband is desperately upset - its like his dad is fading in front of his eyes so quickly and all the care professionals say he shouldn't be *that bad* yet.