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Think positive

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ezinda Parkinson's UK
Think positive

Forget what you can’t do. 

Focus on what you can.

Lots of people here on the forum say they take control of their life with Parkinson's by staying positive. 

https://www.parkinsons.org.uk/thinkpositive

What helps you #‎thinkpositive‬ even when things are hard?

#takecontrol

Lin

Is this where I respond to the Think Positive campaign?

I love the way Parkinson's UK keep giving us little slogans to keep us going, motivating, planning action and activity. Pedal for Parkinson's, In this Together, Party for Parkinson's etc. There's just one problem with all this partying, planning, pedalling, parachuting etc. The letter 'P' won't work very well on my keyboard so I keep writing about being ositive for arkinson's

I have to go now but I do have things to say about this subject.

Positivity is immensely important but how can you be positive after reading some of the heart-breaking stories about Parkinson's. I read one on here yesterday - and I wept buckets for the poor man involved.

I was diagnosed 20 years ago when I was 41. I am Queen of Positivity and Optimism but I think self-help and therapy are the keys to help you to look on the bright side. Art Therapy, Dance Therapy, Building Shed Therapy, Washing-UpTherapy, Looking for Missing 'P' therapy! It works for me BUT there will come a time when it won't. Parkinson's has a way of getting you in the end and for the poor man I read about yesterday, it will not be a word in his vocabulary. Or his carer's.

Does any of this make sense? I can be positive but I can be aranoid too! (see what I did there?)

Lin

One of my problems is  I can't be positive about myself. Having read my piece above I am expecting people to think  that it was ridiculous.

gus

i know what your saying ! i was 36 dx and i feel robbed

ezinda Parkinson's UK

Hi Lin and Gus
Yes, this is exactly the place to talk about thinking positive. Thanks for being the first to post.

Staying positive is one of the six key ways that people with Parkinson's told us they feel more in control of their condition. And Lin, it sounds like a positive outlook has helped you too.

Of course everyone will have a bad day or maybe worry about the future. But even so, when our resources team spoke to others with Parkinson's many shared that even something as simple as acknowledging when things go well could help.

Some of the people in the film so address remaining positive even during bad days or even while worrying about the future. Have you had a chance to watch it?  I hope it gives you both some inspiration.

Ezinda

anonymous

 

My Father had a stroke 6 weeks ago.

It made me think although I have this too face I also now have too think about the Care and well being of my Father he is 76, he has had too slow down and take a back seat to all the things he would normally do.

With that in mind and thinking about my Future, How will i be?, How will he be?.

I have been trying too get round to doing all the jobs that need doing at Home Knowing if i Don't address them Now i may not be able too in the Future,I Cant wait for maybe, and he may not be able too help me or be around too do them.

In the last six weeks I have repaired a shed, that might sound trivial, But it needed doing for the Future, It took me 4 hours too put a post into the inside corner of a shed and attach it too the Shed and seal it,and then another morning on the outside corner to make a strong joint and seal if from the weather, How long would it take a able person too do that?,20 mins? or a hour?.

I felt i had achieved something technical and on my own terms, I hadn't done any carpentry since i was at school 30 yrs ago.I have also re felted one Shed and painted two, cleared out no end of Junk, repaired a green house door, and a cold frame And i'm now looking at some indoor decorating that needs too be Done.

If I can't do these things  I set them out As a Goal, then really What is life??.

Ok i'm not going too be Running a marathon or jumping out of a plane, Or having a nice holiday. that Just isn't the Picture of reality for Me.

Life is hard and it continues too be Harder with this, for me The biggest barrier is still other peoples perception of Parkinsons, they make the simple impossible and the impossible as if it is Just something simple.

Sion Parkinson's UK

Hi sea angler,

Many people with Parkinson's have told us how important having the right attitude can be, and how it's about doing things when you can. Of course, everyone will still have good and bad days. But it's great to hear the sense of achievement you got from repairing the shed, and I hope it's inspiring for others.

Sion
 

 

Bethankit

I have remained positive by continuing to work full time in  the NHS. 

I am now planning for retirement after 37 years in NHS looking after others it now time for me to look  after myself. 

Since diagnosis  in 2012  age 51 any absence from work has not been PD related, let me see that life goes on and  my absences have been for the usual winter ailments and breaking my arm. 

In retirement I will have time to do all the things I cannot  do because of work getting in the  way - long  lie in  the morning, leisurely breakfast,  retail therapy, spend more time with  family and friends.  

Extra volunteering for PDUK  already facilitator for self management  programme.  

Life is good and I have a lot to be thankful for - still able to do everything just takes longer. 

Always look on the bright side of life. cool

 

shefinn

 

Hi Bethankit

Well done, I hope you are appreciated for your loyalty to the NHS, and all the best when you do finally retire. I retired last November and life has been so different and easier for me. I joined our local Parkinsons group and have become a member of the committee helping to organise outings for those who are unable to help themselves and obviously can't go far with out help. I enjoy this work and it has also kept me focused and not ponder on my own problems. So roll on your retirement you won't know yourself with all the freedom you will have! 

Take care and good health - Sheffy

 

Bethankit

Hi Sheffy

Thanks for your response, I know, I keep being  told I will wonder how I ever found time to work. Can I ask what you worked at before retirement?, good for you joining the group and the committee,  I bet you find it really worthwhile. 

Take  care 

Bethankit 

gus

just got back from my dbs nero & nurse as my legs are giving up the shaking & tremors are under controll on deep brain stimulation, so they are trying different meds to give me more on time that is when you can walk normal getting there but alot of jiggling a round but bristol southmead brain center having giving me hope & strength to carry on ! very big thanks to carroline & alan whone who stayed and helped me on a friday night 6.45pm i owe them and their team big time cheers.  They have just been filming with emma willis about dbs its going out next year itv called the miracle. if it wasn't for dbs i would have give up ! what im saying is theres people out there who care !

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