I am hoping some of you guys are able to help me.My husband has PD diagnosed in 2008.In 2010 he was put on Mirapexin M/R.The dose was gradually increased to help with tremor and mobility.As soon as the dose had gone up a few levels he started to get problems with hypersexuality.This worsened to the extent that he would be attempting to assault me during the night.His mind was also full of sexual thoughts and he felt I was "coming on to him" all the time.
Eventually we discussed it with his GP and he reduced the dose by one level and rereferred him to a neuro.When we saw the neuro he was annoyed the Mirapexin had been reduced and laughed off the hypersexuality saying there was nothing wrong with him wanting sex.very much made it feel it was my problem.We struggled on for a further few months then spoke to a nurse fromParkinsons UK.She told us what a common problem it was and to try another reduction but he would almost certainly need to come off the DA as once this happened it just worsened even on a low dose.
We have recently seen the neuro again and this was again discussed.We were told that if my husband came off the DA his PD would be out of control and his symptons would be much worse even though he is on Madopar.
Has anyone any experience of coming off a DA and how they were affected and how bad the worsenig of the PD was.My husband is in despair and says he can't live like this and the strain on our long and happy marriage has been enormous.
Would be so grateful for any help.
Maisie 52 x