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PARKINSON'S DISEASE AND GUILLAIN BARRE SYNDROME

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bobbie
PARKINSON'S DISEASE AND GUILLAIN BARRE SYNDROME

Hello all,

 

Has anyone out there had experience of having, or knowing someone who has both PD and Guillain Barre Sydrome?  If so would they please contact me?

Glasgow girl

Hi I had guillain barrie syndrome in 2004.That was before being diagnosed with PD.

Wendy2017

My mother and I have both had Guillain Barre and now my twin brother has been diagnosed with PD. I'd be interested in any research into potential links.

the Pokermid

My Brother died from complications of Guillain - Barre 4 years ago. He was aged 72 and had been diagnosed a couple of years before. I've had PD over 20 years and each time I've asked the connection question, they (the Neuro's), all agree that there isn't a connection. I'm not so sure!

I feel so much sympathy for you and your family Wendy. You've all been dealt cards from the bottom of the pack. I wish you luck for the future.

Peter 

BRIAN J

Hi, Yes I was diagnosed with Guillain-Barre syndrome in 2012, (age 62)with incomplete recovery, and still have problems with the peripheries, i.e hands and feet. Gradually since then I developed an increasingly problematic tremor, mainly in my left hand, eventually diagnosed as P.D. after a DAT Scan. Initially the specialist thought it  was nerve damage post GBS, as I did too. Now informed in a letter on 15th September that I have degenerative Parkinson's Disease. May have had it for 5yrs!What a bombshell that was. Trying to get contact with the nearest P.D. nurse specialist, left message but no call returned as yet. Feel isolated and not sure where I'm going with all this. P.D. Website help line number was very helpful and are chasing things up for me. I need a P.D. nurse to talk things through with, face to face really, not over the phone. It's not just the symptoms, they are no different now than before I was diagnosed, it's the emotional impact, and what to expect from the medication prescribed.

( Co-careldopa 12.5/50 mgs), and what to expect long term and how to cope with it etc, etc, etc

 

 

 

 

 

 

 

Island Mike

There is no connection between the two conditions. Guillain Barre is essentially a peripheral neuritis, only rarely affecting the brain, but if it did you’d be communicating with the forum through a medium. Parkinson’s, as we know, is a condition affecting the substantia nigra in the brain. There is no similarity whatsoever in the underlying causes of these conditions. GB is an autoimmune reaction to an infection, which in most people would simply disappear without consequence. Parkinson’s has never been associated with infection. 

Of course there will be people who have had both conditions. Parkinson’s is relatively commoner than GB, but statistically it is bound to occur to a few folk that the two conditions will arise. That’s all it is - coincidence. That’s why the neuro specialists will always say there is no association, because there isn’t any.

BRIAN J

Hi island Mike,   good to hear your comments. I probably knew, (or should have known) this all along, but yes your comments put it in a nutshell. i.e no connection. I suppose it's just bad luck that I got both conditions. Out of interest, being no statistician, I wonder what the odds are of both GBS and PD occurring in the same person, bearing in mind the relatively long odds (1:100,000) of getting GBS.