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Newly Diagnosed

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Hi Daffy, There is a downside to the beer benefits. I have found that the following few days I feel like crap, and that is without going over the top. I assume it's the meds I take having an effect.

Regardless, I will suffer for the next few days starting Sunday as I am on a nite out and will quoff a few!.

Have a good weekend. (And you Tee Hee)



You too, enjoy yourself ...have a few sherbets.



Hope you had a good night out. We can't always just be doing what's best for us. Need a break now and then.

I've never been what you might call a heavy drinker but do like a tipple now and then. These though days one or two seems enough and I nod off



I was diagnosed on the 10 Nov, my first symptom,  although I didn't realise it was loss of smell, which I assumed was from using strong chemicals when I worked in the pharmaceutical labs of a large company. This was ca 40 years ago. I am a sports and remedial massage therapist and some of my clients have PD.  It was easy to suspect PD when other symptoms came to light ,, this took ca 3 months. I am in the process of finding which meds are best for me.I am 61 also have arthritis in my big toes and I'm a runner. Done London Marathon twice plus numerous halfs and 10k races. I refuse to give up as exercise is good for PD.

At the Therapy Expo at the NEC I met an amazing woman Julie Jones whose looking at the most effective exercise for PD sufferers 


Hi Runrig

I was diagnosed spring 2016. Like you, I had suspected PD for a while but was amazed at how many little niggles I had just been putting up with (loss of smell included) were also PD related.

I think it's good to keep up the running. I'm a fairly active 64 but trying to incorporate some more structured exercises. I like walking but running's not really my style. Good luck. Daffy


Hi Runrig,

I was diagnosed 5 years ago, in 2012 and I thought as I always did when I had a problem it won't beat me, I'll beat it. How bloody wrong I was mate; I always spent at least six to eight hours a day on my feet lecturing at university, and I don't mean standing on the spot, I made a habit of moving amongst the students in order to keep them on their toes (awake). I was 63 years old and still capable of running at a reasonable speed, but one afternoon I was late changing lecture halls and tried to run from one to the other which was on the other side of the campus, a distance of about 300 yards. I tripped and fell flat on my face as I was running, but thought nothing of it, I put it down to carelessness, I got up and began to run again, but my legs just would not hold my weight. I ended up hobbling into the lecture hall and making my apologise to the students for being late.

That as Mr Fox would say was my "wake up call..." but I did not realize it. It was not until I began to find that my writing skills were rapidly disappearing and I could not sign my signature for my monthly salary cheque that I decided to go to the doctor.

To cut a long story short; I am now in a position whereby I cannot even walk 50 yards without my legs, ankles, feet and lower back giving me a great deal of pain. I try to go out for a short walk every day with my wife who worries if I go alone, god bless her. 

  • Hi Prof as a sports massage therapist I often come across clients with minor leg injuries who can't run for a week. They are almost suicidal and I wander what they would do if they couldn't run at all. My mileage is reducing but I get satisfaction from helping new runners achieve there dreams. We had the Xmas meal and everyone knows about my recent dx and are brilliant with support without being overpowering. I even got a trophy for Club Person of the year. It almost bought tears. I'm determined to keep going as long as I can, but I dread the day when I can't run any more. A friend runs a Nordic Walking Group. Would something like that be of benefit to you