Hi everyone, just joined the forum so here is our story so far...
Mum is 78, diagnosed with PD 3 yrs ago, 6 months after we lost my dad. He had cancer diagnosed on a Wednesday and died the following Thursday. We really miss him. He was our rock and looked after all finances, paperwork etc for mum.
I have had to take over this role, which I don't mind but the last few months Mum has declined quite a lot.
She had a fall in her bungalow and fractured a vertebrae. Since then she has been terribly anxious at times. So much so that she has called the paramedics 3 times and we've spent the night in A&E....
Her anxiety is debilitating, she feels like she can't breathe and that she is dying. She has also had terrible constipation and a very swollen belly. She has been on laxatives but they don't seem to help that much. These symptoms get much worse when her meds are due.
I work and have 3 'adult' children, one in middle of A level exams and the other two working very hard.
Mum has been ringing me at all hours, so I kept go ing round and try to calm her but things got so bad that we have moved her in with us temporarily until we can get some resolution and stability of her symptoms.
I am finding everything very hard. We are trying ritigotine patches starting tomorrow and she is having a colonoscopy tomorrow as well.
She takes Sinemet plus (1 1/2) 5 times a day, madopar in the morning and a sinemet Cr at night along with mirtazipine.
Does anyone have any experience of rotigitine? I'd be interested to know if it is likely to help as I am really struggling to cope atm.
I am the only person looking after Mum. At times I just want to run away from it all, but then she needs me and depends on me for everything.
Thanks for hearing me out.