Improving the Quality of Parkinson's Healthcare

Everyone with Parkinson's needs high quality healthcare at every stage of their condition. Together we can make this happen.

Our 2015-19 strategy included a target to improve the quality of care and narrow the gap between the best and least well performing Parkinson's services by 25% within five years. To achieve this we launched the UK Parkinson's Excellence Network, bringing together the voice of people affected by Parkinson's, the influence and support of Parkinson's UK and the passion of leading professionals to transform care. 

We measure the quality of care by conducting surveys. Over 9000 people affected by the condition responded to the 2017 Your Life Your Services (YLYS) survey and the Patient Reported Experience Measure (PREM) of the UK Parkinson's audit.

The results show a 16% rise in quality has been achieved since 2015, with a reduction in the gap between the highest and lowest rated services of 11.4%. This is really positive given the big challenges facing health services over the last two years. But the findings also show that improvements are still needed in a number of key areas. 

Please tell us about your experience of care by completing the Your Life Your Services survey.

Where is improvement needed and why?

The power of multidisciplinary teams

Parkinson's Physiotherapist, Fiona Lindop, talks about the importance of putting people with Parkinson's at the centre of their own care to help them manage the condition. 

An older man with Parkinson's talking to a health professional in hospital

Tell us about your healthcare - complete the survey

We want to make sure people affected by Parkinson's are getting the right healthcare and support for them. And we need to know where improvements are needed.

Complete the Your Life Your Services Survey

Get your service involved in the UK Parkinson's Audit

People whose services take part in the UK Parkinson's Audit rate them more highly. These services look closely at the care they provide to people with the condition and use the results to improve in areas where they fall short. In 2017, 477 services took part. We want more to take part in 2019. Ask your doctor, your nurse, or your therapist if they are taking part, and if not why not.

What care should I be getting?