Has anyone taken Q10. I read that there has been a trial which seemed reasonably promising. The dose was 1200 mgs a day and it seems that new trials will use 2400 mgs a day. If you look to buy them the recommended dose is no where near these amounts

its £40 for 9000 so thats roughly £10 per day. the recommended daily dose had no effect in any test. i would be wary of taking 25 times the recommended dose of anything without medical supervision. also the tablets are quite large and you need to take 25 of them! (200mg tablets are even more expensive)

Welcome to the forum Birding. I was recommended a brand of Coq10 by someone on this forum, and that person had really done his homework on natural supplements. I got it on ebay from America, and it cost £60.15 inc postage for 600 capsules of 400mgs each of coq10 plus bioperine ( which enables the body to absorb coq10.) I take 1200mgs a day which works out at approx 30p a day.Tests have shown that there are no known side effects, and I haven't noticed any. I have been taking them for about two weeks. Kind regards, Carole.

q10 is no more a 'natural supplement' than dopamine. both are chemicals normally existing in the body.
there is a very good fact sheet on this site http://www.parkinsons.org.uk/advice/publications/treatments_and_therapies/coenzyme_q10.aspx

Thankyou Turnip, I stand corrected. I should have said "non drug Supplement". That link was very interesting. Kind regards, Carole.

Thank you all for your comments. I have read the PD information. We will be going to the neurology clinic at the end of the month so I will talk to them about it. My husband also has myeloma ( cancer of the bone marrow ) so that will have to be taken into account as well before he decides whether to take it

Hi, i received the info leafleat from my P.D nurse soon after dx yet i have just been back to neuro and enquired about this and he basically said "take it if you want to, but there is no clinical proof that it has any benefits"!!! I got the impression that he poo pooed anything other than tried and tested drugs but it still leaves me with the question, is their anything i can take or do for myself that may help even if only a tiny bit? I also asked about antioxidants(linked with free radicals) again another leaflet but was again told i was looking into things to much,I should listen to him as he's the expert!! Also got told off for not starting the prescribed sinement yet as delaying it (worry about later effecs of it;s use) was unfounded as sinemet will work less effectively the more advanced i get so no point in delaying it! Think i need to have a re-chat to my P.D nurse about all these issues so that I can have an informed choice about MY body. Any other advice re silmilar problems welcome.

Thanks all

Diane

Diane, you can probably still find information on early versus late start of levodopa on www.medscape.com or www.uspharmacist.com.
When I was diagnosed in 1999 the consensus was to delay the start of levodopa medication for younger patients(up to age 65/70)in the hope of thereby delaying the onset of the dyskinesias that would eventually appear. So young patients were started on Dopamine Agonists.... with their own problems. The last few years, after more research and/or analysing existing research outcomes,the general view is now, that this postponement of levodopa therapy makes little difference. Postponement could, however, deprive some patients of very effective management of their symptoms and good quality of life for several years. Your neurologist could be right about the effectiveness of levodopa at this stage, because the disease progresses all the time and the drugs taken at a more advanced stage of the disease will have to work harder.

Hi Kate,
Thanks for web site info, am about to look them up and hope they help me make an informed choice about when to start Sinemet. You probably remember the days of feeling relatively well and not letting initial symptoms trouble you too much, well guess i'm there at the mo and thinking i can cope without meds, but know realistically this could be sooner rather than later! Think it's a case of body versus mind for the time being! Thanks again
Diane x

Hi,
Spending a lot of money,if £10 a day is the correct figure is pure folly.Placebos can be found much cheaper than that.Clutching at straws is brilliant news for those out there exploiting the vulnerable.I wouldent touch Q10 with a barge poll.There is research constantly on the go and i for one would not dabble in the world of dodgy supplements.1,2,3,4,how many years before strange effects appear taking a supplement not recommended by professionals.
I am 47,several years of quality with Levadopa Kate.Years fly by and i for one will be delaying that one for a while.The brain is complex and everyone is different.I still think that Levadopa should be put off until totally necessary.Now if i was in my late 60,s to 70,s things would be different.Younger people with pd i think have it harder.If i was 70 i would expect things like pd.To be honest i don,t worry about supplements,faddish exercises,should i eat this,should i eat that.Should i have a drink,will it counteract.I and many others have more pressing things to worry about.I take my meds and then get on with all the important things in my life, without worrying about the long list of possible therapies/placebos and alternative brainwashing scams.
Can,t stand these supplement things
I will eat grass from my front garden and convince myself its good for my pd.Won,t cost me a penny.I will wait for a proper cure should it arrive and i won,t be holding my breathe,but you never know.
Keeping it real and avoiding scams
Titan