hi i am 39 and have had parkinsons for 15 yrs. I have been on 2 patches of 8mg neupro for 3 yrs. the only place they stick are on my *****. They now only last 4 to 5 hours and i hardly sleep. I am getting lots of anxciety any advice.Idid briefly try requip xl and tremor was worse.

thats very young.
have you been on levadopa?

no i havent taken levdopa yet. feeling very low today i have three small children and its very hard

i have a 10 yr old girl and a 13 year old boy with downs. 3 little ones are hard enough without pd.
do you have anyone to help out?

insomnia and anxiety attacks have been reported with neupro patches. perhaps you should talk to your doctor about alternatives.

Sorry you are having a very hard time. I was diagnosed at 57 now 63. I have always been an anxious person but I have had a lot of help from my GPs in dealing with it since diagnosis. I was put on an anti depressant which helps me greatly and I have been prescribed tranquillisers at times when I had bad spells of anxiety for one reason or another. Have been much better recently now my lifestyle is sorted out. I hope you have an understanding doctor who can prescribe something not too strong but effective that would help you and make life enjoyable again.

Should have said that I have no experience of neuro patches. I was started on levodopa 2 years ago, then prescribed pramipexole, then azilect 6 months ago. Hping to stay on the maintenance dose as long as possible.

Hi Adelaide
I use Neupro patches, 12mg and, like you, the only place they will stick is on my btm. Good job I have an expansive one!
I take large doses of levadopa but still suffer extensive off periods. The neurologist recently increased the Neupro from 8 to 12mg to help make the medication last longer and it has helped.
In your case I think maybe it has been helping your body use what natural dopamine you have left. Perhaps you need more than this now. I'm not a health professional just a pwp but I know what a difference it makes when your meds are right. I should have a word with your Parkinsons nurse to get some advice.

thanks for all your kind words. i am feeling a bit unsure about going to docs. because i do not want to change meds at the mo kids are all home and need me alert and well. i live in italy moved here 3 yrs ago and you dont get the kind of supportyou do back in the uk. i just want to say how nice it is to offload to people who actually understand. i find it very difficult explaining to people how i feel all of the time.

hi adelaide, i was on the patches for about 2yrs it was only when i started seeing another consultant that i was taken of them and given mirapexin and that was when i realised they were not doing anything for me the mirapexin got me back on track, it does,nt work for everyone but it worked for me worth a try good luck sue.