Hi
I am 72 yrs and My brief history is that i was diagnosed some 6/7 months ago and started on Ropinerol. This drug did not agree with me due to the bad side effects caused. I was weaned off this drug over a 6 week period, then 2/3 weeks drug free.
The upshot was that my symptoms returned and my specialist decided to try Madopar 50/12.5mg. All seemed ok to start with,but i am now into my 7th week and the walking, extreme tiredness and tremor seem to be getting a little worse.

I have also been hearing quite a few disturbing reports about Levedopar and that there are possibilities of developing dyskinesia after some use and would like to hear from anyone who has been having problems of this sort since being on this particular drug.
I am due to see my neurologist very shortly for a review.

Hi SM2U

Re your question my o/h was taken of the DA family of drugs 18 months ago now due to horrendous side effects !!
He has always suffered from dyskenesia but was told that the levadopa family would prob make this worse it has .

He takes 3 doses of Madopar dispersible but main drug is Stalevo 7 doses of 150mg and one does for overnight of 200 he has been told this is fairly maximum dosages and not much movement to change, suppose we have just accepted not sure if that is the correct attitude he tries to take each day as it comes.
The dyskenesia is very warring for him as some days he has it for hours and hours meaning he can do very little,he has tried so different many drugs and combinations so it is always difficult to say what helps one person doesn't always help another and VV.
Hope this family of drugs helps you x

Hi Sandman, Why worry about dyskinesias at this stage? They might never happen. Certainly at your age you stand a good chance of never experiencing these. It is the young Parkinson patient, and some are quite a lot younger than you, who is particularly susceptible to this side effect. Generally the dyskinesias start to appear in about 50% of patients after five years of levodopa treatment. These involuntary movements are dose (the higher the more likely) and duration(the longer you've been taking them) related.
On the other hand levodopa can give you several years of a reasonable quality of life.

Hi SM
Reading Kate's paost realised mine sounded very negative sorry xxx
She is right I didnt say o/h dx at 43, 9 years ago and he is on a fair wack of meds, the DA's did help a lot but unfortuntely he was unlucky that they were not for him, he has had quite a few years pretty good on the Levadopa family as well so you may find you do not have to worry about Dyskenesia 'fingers crossed.

HI,
I am 61, diagnosed in 1999 and currently take 6 x Stalevo 150 and 6 x Madopar 62.5 dispersible with the option of increasing the Madopar to 12 per day.
I have not experienced any problems but if I do I will certainly let all concerned know.

Cheers,

Rhino.