We’re really pleased to welcome you to the new Research forum. It’s a great opportunity to spread the word about Parkinson’s research, and the urgent need to find a cure and life-changing treatments. We look forward to the conversations and discussions that will be shared here.

Just a bit about the involvement of the Parkinson’s UK Research team:


We will post under the username ‘Research’ in order to:

- Signpost users to specific international research news
- Raise awareness of how people can get involved in research
- Consult the opinions of forum members.

Although we’ll be raising awareness of research studies that are looking for volunteers, we’re not recommending or encouraging forum members to take part.

However, we will have checked the appropriate paperwork to ensure that the research is authentic and suitable for people affected by Parkinson’s.

If you’re interested in participating, you should contact the researchers directly for more information and talk to your own doctor or healthcare professional before making any decisions.

Unfortunately, the Research team does not have the capacity to respond to questions posted by individual members. But, if there are a number of questions on a particular topic, forum members could suggest the topic for a research Q&A session.

You can find out more on our Q&A sessions or submit an idea at: http://www.parkinsons.org.uk/questions

Hello All
Monday and Tuesday, very bad ,battered by Parky 85-90% shut down
the worst depression I have ever endured, Tuesday night invigorating normality resumes
after taking my last drug intake of the day, within minutes I began to feel the
joy, the blessed relief ,I was free of parkys grip, from the desperate dangerous
lows, to the most invigorating euphoric feeling I could walk talk and though I
was unsteady and a bit Dysky I knew I would be well , well enough to make my
appointment at NTGH 2-30pm the reason for my 19,ooo,oooth trip to my not
favorite place, Parkinsons Research my second visit in fact I really look
forward to these meetings which last about three or four hours Its kicking back
you see, the monster had me crushed beaten almost to extinction yet there I was
giving blood answering hundreds of questions , feeding information into the
system, its a great feeling, I know there is a hard road ahead Im 62 I could
live another 25 Years,,87,, its fearsome ,sure it is but maybe all this work
that good people are doing all over the UK will smooth my journey ,mine and
thousands of others Kind Regards and a great Christmas to all
fedexlike

In seven days I will return to NTGH to continue the Research program started three weeks ago, I understand the subject of scrutiny will be my lung function
in addition to the many millions of questions,,"sorry my wife tells me 50 000 times a day not to exaggerate" . I thoroughly enjoy my time assisting the specialists nurses and Doctors in their work but am a little disappointed I want
more, I want to help more, I want these good people to see me when I am mobile and capable as I am now, severely Dysky, and the worst of the lot complete shutdown when only 98% of old fedex remains to be replaced by a senseless useless
dribbling evil tempered moaning grunting 62 year old child, who cant remember the day, the year cant speak spell in short I am virtually dead, the very soul of the
person I used to be is gone, and this thing remains, if the different phases I go through can be seen , witnessed, this must be of use, its not nice but PD by its
very nature is a very nasty horrible life changing affliction, I want to do more
so I am going to ring the Hospital now, I will let you know the outcome.
fedex

ANSWER PHONE, I AM eager to do this before BLACKHEART uses more powerful weapons
in his Arsenal, the most feared being ,!!! I don't even like to think about it
Dementia I need to give , down to the very last detail whats happening to me, Its
urgent I used to notice the changes in me roughly every 2 --2half years,then 1yr
then about 9 months and within the last 6 months, very very severe shutdowns, inability to walk without staggering and crashing into things, falling, memory
failing, its getting worse faster than I can fight it.I have tried again,,,,you guessed it ANSWER PHONE,,youve got to laugh or you cry, in the words of the late
Great SPIKE MILLIGAN, I TOLD YOU I WAS ILL

Kindest Regards to All fedex