Hi Vivian, sorry for the delay in reply ~ I've emailed you the post you requested.

Best wishes,
Cutiepie x:)

i got a tummy scan thursday,to see why i have bloated tum and problems with bowels etc.been like this for bout 7 months,had lots of treatment to try go loo,and stop bloating ,im on a soft food diet now,done by the dietian at shrewbury.but it took till now for them to decide to do a tum scan.all this sufering and all the added meds to me system carnt be doing me any good.

Hi Cutie pie and alji,

Thanks I got the email okay, You have my sympathy alji everything is such a struggle, my OH has just got his teeth after three months it drives me crazy, also I had the GP ring me today to ask me why he had to do a blood test when this was all discussed at a meeting four weeks ago with various staff members it never ends does it.
When my OH had a scan to see if his bowel was empty after taking the usual meds to clear him out they found that he still had quite lot left, which exlained his pain.
Best of luck with your situation and I hope it gets resolved quickly.
How are you feeling, I wish they could catch the rotter.
Best wishes both
vivian

hi vivian,thankyou for replying to my post,could you tell me when your hubby was so bloated and struggle with loo,after taking so many meds to help relase,like me,did he ever feel very sick,or be vomiting?,cus i do,and this is also why they looking at prob with tum,see wot happining.your rite vivian ,never seems to end,why enearth gp had to call the patient for to ask bout the blood test for is beyond mehope hubby getting on with his new teeth ,i rember when dad had his,he could not get use to erm,kept gaging all the time and saying they hurting him,and refused to put erm in in the end,wonted to be gummy and free,was his wordsi went out yesturday first time in two weeks,apart from goin police station,but that was being picked up by the police.today i got pyseio on me hips,beci taken me,but being in a hospital with so many people round me,well you can imagine wot im like this morning,nerves a teather,and tummy doin sumersolts,but i no i have to do it,and not let him take all my life way.vivian also could you tell me if hubby suffered with swallowing problems,when eating,im on soft food diet now,and aslo has his voice gone very quite?

I found this documentary of great interest:

Horizon - Eat, fast and live longer!

http://www.bbc.co.uk/iplayer/episode/b01lxyzc/Horizon_20122013_Eat_Fast_and_Live_Longer/

Worth watching!

Hi Alij,

My husband didn't have any sickness, so I am not surprised they are doing a scan
you need to keep insisting they investigate as this can't go on.
My husband hasn't been put on a soft diet even though they said they would as he hadn't any teeth and had choked three times and they had to call the Paramedic, it drives me mad. Thank heavens he now has them and I can understand him as well as him feeling better to have some nashers in. He has a quiet voice this is very common with PD and if possible you should have some speech therapy as it makes quite a difference, you will need to keep up the exercises but it would make a huge difference for you.
I expect you have been watching the olympics they have been great, I hope the closing ceremony will be good then the para ones to follow Great!!
At least that is something to take your mind of the last few weeks a bit, still no news of catching him I suppose.
Just to give you a laugh I go swimming several mornings a week to help with my back problems, I look dreadful and have to use an aqua belt to keep me up not a pretty sight, I try to do about 25 lengths, I told them I am doing team GBOAP and hope to win some chocolate medals oooh lovely.
love vivian

hi vivian,i had me scan last thursday,and was told to ring gp in a week,but the following day i got a call from gp,giving me my results,which has nocked me back agin.ive got told i got a fatty liver which needs monerting,cus i dont drink achoal,im not obese,and im already dibetic,it could be insulin needs looking at,or meds she said,havin a blood test ,then she say i got gall bladder stones and sending me to a gyno.and me bile duct is blocked from bladder to bowel,and tumer in stomach.all of this wwas bad news for me,so leaset i got answers now though i guess.i already see a speech thearpist vivian,in shrewsbury,she does help.as for the olympics watching it all like a hawk,and carnt wait for the para to start as well,it keeping my mind occupied,and least then not have to go out of bunglow.swimming 25 lenths vivian is very very good with a bad back,well done to you,you gave me a giggle wonting to win chocky medals,yummyas for the attack,still people being intervied,it seems to be a long process,mean time he still wadering the streets,they seem to think he left telford though.

Hi All
Very interesting to read your comments. I have struggled this year to sort out my digestive problems. Avoiding protein helped a bit but caused more stess.In a fit of anger I refused to eat and stated on "slimfast". I mixed it with rice milk which is more digestable. My day now starts with fruit and shake, veg soup for lunch and light supper like sandwich. Most days I live on snacks and drink lots of water and herbal teas, no coffee or booze.I occasionally eat a proper dinner, but mostly veg. The less I eat the better I feel and not having a food routine as
such is less stressful. I dont binge but eat what I fancy which stops the craving for icecream and crips etc. This may not be healthy but it works for me so far and I dont feel so bloated and maybe my weight will come down too!

Good luck everyone
Iris

Hi Iris

I found your comments very interesting. Like you i find, the less i eat the better i feel. This is without doubt due to the levadopa drugs working better and any benefits not being depleted by the digestion/protein issue.

However the price i pay, just to get the levadopa drugs working is quite high. Very rarely nowadays do i engage in what you might call normal social activities, like Sunday lunch or dining out or indeed family meals. Sometimes it makes me feel isolated and even depressed because your unable to engage in normal stuff in respect of one's eating habits. It is bad enough having your daily life impacted by parkinson's disease without then having to run the daily levadopa digestion/protein challenge.

Personally i find it mind boggling, that nearly 50 years after levadopa first became available here in the UK this is still an issue. If drug companies and research experts cant find a solution to this problem, then i don't hold out much hope for them finding a cure for parkinson's itself within the next 100 years.

Hello Blueeyes,

I know how much more difficult it was for my husband coping with going out to family occasions, we missed weddings and other family parties because of his PD, but we also managed a few because my family understood and they set aside a spare room so that he could rest until he could switch on again then rejoin the rest of us. We also found that a madopar dispersal was a life saver as it only takes about twenty minutes to work, do you think that your doctor would let you have some for these occasions or even generally as I think you have to have some quality of life.
We also invited friends to visit us more and usually that worked as my OH could take himself off to his room for a rest and join in when he felt better.We had his 60th birthday in our garden from about 3pm to 8pm as it was better for him and several of our friends took on that idea and found it worked well for them as they are all getting older.

I hope you can sort something out as you only live once and you want to enjoy things now. best wishes
vivian