Hi all.

Firstly, Parkinson's isn't a disease, it's a syndrome, or condition. It can't be "caught", or passed from person to person, and nobody ever died of it. That's why this charity has dropped the word "Disease" fom its name.

Secondly, whilst the condition is progressive, everyone progresses at a different rate. One chap on here was diagnosed at the age of 8, and is now in his 40s, but still works part time, and travels the world on holiday.

I'm 60 and was dx 10 years ago, although the first symptoms appeared when I was in my 20s. Yes things are getting harder, but life is still worth living, and I'm still capable of having a laugh!

Ray.

as the partner of myway i am posting this to clear any misunderstanding this was not written to alarm but to point out that this is all part and parcel of pd and could happen to anyone.there is no point in burying your head and hope it goes away becauseit doesnot.we go to the clinics regularly and see far worse and thank our lucky stars he is not that bad

I think we all know that myway, but there are good and bad ways to discuss sensitive topics.

Myway,
I was sorry to learn of your fall and how your symptoms have worsened since it.

I do believe however, that being positive even when all the cards are down or against you doesn’t constitute “burying your head in the sand“.

I too have had some very difficult times; my PD went untreated for over seven years, coupled with this I was homeless. I had to fight back to change my journey’s path. Believe me it was not easy.
At times I felt that I had come to the end of the road, perhaps in a way I had.
I am fifty six, live on my own, I have no family for support but I have gained a quality of life.

I refuse to worry about what tomorrow may bring, I will live each day to the best of my abilities, I will continue to have a quality of life.
In fact, I will fight to the very last breath in me to stay positive. Why? Because I owe it to my self.

No one knows what is around the corner or what life will throw at us tomorrow; this includes people that at this moment have a healthy life style and feel as fit as a fiddle.
Being positive doesn’t make things go away but it does give us the courage to move forward and confront each day with a different mentality.

Nothing to worry about anyway, if you've got at least 17 years left in you.

According to NASA a 1-kilometre asteroid (known as "Asteroid 1999 AN10") will pass the earth only 19,000 miles from our surface on 7 Aug 2027. (By comparison, the moon is about 239,000 miles away).

So we could be knocked off-orbit, or lose our atmosphere, or suffer another ice age or whatever.

I don't think Parkinson's would be a major worry in such a scenario!

Hi myway,
Under the heading "scary future",i feel that you have every right to express your feelings on this topic.All elements of parkinsons should be welcomed for discussion,including sensitive issues that many positive people for some reason feel unable to relate to.You have had a bad time recently and are made to feel worse when being open and discussing the downside to pd in relation to your personal circumstances.This forum should be open to all points of view whether positive or negative.
For myways partner to have made an entry on behalf of myway,indicates if i am correct,just how much myway has been upset.Why can,t they be down and say how it is for them.Sometimes the word POSITIVE for someone who is feeling totally NEGATIVE,is like fingernails down a Blackboard.
Hope things improve for you myway
All the best
Titan

hello all....

not a happy subject, at all...but I am dealing with most of the symptoms, not yet dx....but in Oct. I should have the answer. So far all my tests (for other illnesses) have come back negative. I just wanted to let you all know that there is supposed to be a special on our news tomorrow morn (would be about 11 am your time)about the work Michael J Fox has been overseeing with the doctors he's been in touch with.
Will post here to tell you what they have found. Hopefully they are closer to finding a cure.....They said it should be something that will help people with PD all around the world....so I'll light my candle, and say my prayers that they are finally on to something. (I have an extra selfish concern in this, as my daughter-mom to 2 little ones, may also have PD)

hope you all sleep well tonite.....

Titan, I am the first to agree that anyone can express their feelings on any topic on the forum.

If you scroll back to page one of this thread “myway” asked me a question, “stay positive ... what do you actually mean?
(It was in reply to my previous post).
I replied to that question/post. This in no way takes away “myway’s” prerogative to express his feelings.

To say, “Sensitive issues that many positive people for some reason feel unable to relate to”.
Is, as far as I am concerned not true.

I do relate to them, I have been there; I have got the T shirt and believe me I have had hard days, months, even years; where the scratching of finger nails down a blackboard would have been better than the life I was going through.
I’d wish them on nobody and it is for that reason I cannot not bring myself not to encourage someone to be positive, even on their worst day.

I am sorry. I meant not solely the perogative of PWP, but I daresay that was taken as a given. I am truely sorry for your plight Myway and of course you have the right & opportunity to express your feelings, especially on this forum.

i was not quite certain if to post on this thread or not,by the reaction i mite get off some people but anyways here goes and these are me true feelings about me futre,well to be honest as u allno by now im am a sentitive person take things to heart very easy and can not cope with daily things,i have my ups and downs all the time,like we all do,when im positive about something i do really well and then i get kicked down so easy and fall to bits,i have no self worth ,and no confidence and get walked over so easy ,but spose its cus my self estem is not good and so i let it happin for a quiter life.my futurere though i am scared of i have many falls with pd and have other medical needs that need lookin after,and i no my life is goin to be cut short compared to most,i have a carer 7 days a week who looks after me and i think they do a great job ,but i do feel like a burdon to people.now thats my negative side in me ,so for me futre for more positive ,i go to pd meetins and do volenteer collections and things for money for our surport group and for the pduk, i belive if i look foward towards raising more money for health problems that we will find a cure in the end for pd and for other medical needs that i raise money for.so as u see iam negative and positive kinda person but theres one thing about me that no one takes away from me and thats my smile and laughter when im havin a good day