went to see doc`s(walton centre,fazakereley) very pleseant(he filled in my dvla form basically approving me to drive for which dvla pay him £50) basically he can only speculate on diesese`s progression as an average hed expect 5 yrs on current meds a further 3-5 yrs on another type before they become ineffective as well so more and more drugs and maybe a deep brain stimulation op or i could be on current meds for 20 yrs plus, its all guesswork ,he`s upped my dose(pramipexole/mirapexin) as my improvements have plateaued and will keep upping till i get to an acceptable level as for,just got to think of the positives and be optimistic not let it get me down

My husband was diagnosed in august.He has told the dvla but they are waiting to hear from the doctor.He is only on Azilect at the moment and hopes to keep driving.I cant drive but there is always internet shopping.Best wishes

Hi bodget,
Just writing to give you encouragement ! I think it's fortunate we don't have crystal balls and am happy to live in the present, enjoying what each day brings. Too many people, healthy and not so healthy, seem to spend so much time speculating about what might happen in the future , they forget to live in the moment.
I expect the best, and work hard concentrating on 'good ' pictures in my mind. Also avoid negative people who can bring you down and have a laugh/joke every day , it's just as good as our meds. ! Oh . . . . . . . and keep active , even if you're not quite up to marathon status just yet ! Best wishes.

Well said Lorna, (Idem)

We need to surround ourselves with people who are positive.
People, who have a positive outlook on life. No matter what happens;
we will continue & keep being positive.
Any fact facing us is not as important as our attitude toward it, for that determines our success or failure.

After all wasn't it Watley who said,
"There are two primary choices in life: to accept conditions as they exist, or accept the responsibility for changing them."

We may not be able to change our aliment but we can change the way we live each day by living it at it's fullest.
If we can draw deep into ourselves, we have the power to live each day beyond any human conception of someone with PD.
There are many members on this forum that do that each day.

bodget, you too have the power to do this, don't let PD rule your life , you must rule PD!

stay positive ... what do you actually mean ? you can;t just say think positive and pretend you haven't got a problem. pd is a progressive disease for which there is no cure.Nobody can know what the future holds,but when you are a quivering,drooling mess unable to walk properly you can say or think what you like but it is not going to make any difference to the outcome of this neuro disease,You might be lucky and get away with it but in the meantime you have to be realistic,face up to reality and deal with it accordingly.

Myway said, “stay positive ... what do you actually mean?

Well, being positive doesn’t mean that you are not facing up to reality or dealing with it accordingly.
Its how we deal with reality that in my opinion determines the outcome.
If you believe you can do something you can. If you believe you can’t, then, well you can’t.
Having tried is better than not having tried at all.
Yes, Pd is for the moment a progressive disease, I believe in our life time they will find a cure; in the mean time medication is getting better and more sophisticated. We only have to see how far research has come along in the past ten years.

There are many examples of people with incurable conditions that live daily in what most of us would consider an almost impossible situation; perhaps even to the point of why do they bother?
I think that they have found the secret; the quality of your life is determined by the quality of your thoughts.
So that’s why I believe we need to stay positive.

Speaking as someone whose husband was diagnosed last December, your words put the fear of God into me, myway.

Whilst I'm sure that wasn't your intention, I thank ncn for counterbalancing your words a little.

I'm fighting every day to stay positive, but hearing possible outcomes like this doesn't help.

Myway, you put the fear of God into me too, not for me but those who I trust to help. I hope that this was not your intention. Also inability to walk, shaking & drooling are not the perogative of PWP

hello,first of all i would like to apologise for causing you any discomfort or fear,but i can only be honest and tell you the way it can be for pwp.i've had it for ten years now and i have from the start been very positive and upbeat,i excercised regulary and tried to look after myself as best as i could,but things took a turn for the worse after a fall,which can happen to pwp.pd now is about the constant shaking from my jaw to my toes,drooling,insomnia,poor mobility,loss of confidence,slowness of movement it takes me ages to put my trousers on etc and the list goes on.i'm afraid whether i like it or not,or how upbeat and positive,its my perogative,its what i'm stuck with,i hope yours doesn't get this bad,don't give up and like mickael douglas said.. quitters are whimps,so don't give up.s

Thanks for your post Annebernadette - glad to know I wasn't the only one upset.

So sorry to hear of your fall and deterioration, myway.

I have to believe though that this isn't necessarily what will happen to my husband as he progresses. Surely not everyone suffers like this?

I wish you well myway, and hope you feel better as each day passes.