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biddy
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Posted - 20 Aug 2009 14:46
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I do not know if this will help or not. my brother died on the 3/8/2009 he was told he had PD when he was 15 that was in 1975. towards the end of his life the doctor's were saying he might ofF had Mitochondrial.disorder. and not PD. It did not make much of a different to us. but it might make some difference to some one who has been told they have PD.
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Tulip
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Posted - 20 Aug 2009 14:49
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Hi Biddy,
Sorry to hear about your brother. Thanks for taking the time to give the information, I must look that condition up.
Take care
Tulip
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delight
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Posted - 21 Aug 2009 07:56
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Biddy sorry to hear about your brother. I agree with u. Thank u for sharing this with us
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ali j
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Posted - 21 Aug 2009 19:34
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BIDDY ,SORRY ABOUT YOUR BROTHER,HUGS.XX.
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biddy
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Posted - 21 Aug 2009 20:11
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thank you all
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ncn
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Posted - 21 Aug 2009 20:43
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Biddy,
Sorry to learn about the passing of your brother and my heart goes out to you and your family in this difficult period.
Thank you for bringing to our attention the possible cause of his illness.
For those members of the forum that would like to know more about
Mitochondrial Diseases here is a link:-
http://en.wikipedia.org/wiki/Mitochondrial_disease
May you always remember the happy times that you shared with your brother.
ncn.
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English Country Dancer
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Posted - 21 Aug 2009 23:07
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Sorry to hear of your loss.Barbara
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biddy
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Posted - 23 Aug 2009 04:10
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I really need some one to talk too. I am so afraid . I do not know if I am crying for my brother or my children. I have two sons aged 22 and 23 and both are showing signs of PD but they do not realize this. they are both going through tests but again they do not fully know why. can some one give me hope
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Mike T
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Posted - 23 Aug 2009 14:22
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Dear Biddy
I am so very, very sorry to read your tragic news re your Brother, and now your latest posting.
I have PD and would hope and pray on bended knees and shall do so, that your sons don't have for no other reason than for their good luck and health .......
Not being in the medical profession in any way or scientific in any manner I can't offer you any tangible hope, but what I CAN and WILL do, with love in my heart is offer you as much hope as any other human being can, and that of my faith which makes me think that stress and other factors, such as medication etc can cause Parkinson type symptoms without it ever being Parkinson's.
It has also not been proven to be hereditary plus there are many things other than Parkinson's which are very treatable and curable, so take heart Biddy........, easy said I know, I have two daughters............
Keep your hope alive, I have never heard of one let alone two siblings being struck with hereditary Parkinson's, check the website........
We are here, post away , you're not alone......
God Bless
Mike T.....
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Mike T
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Posted - 23 Aug 2009 14:24
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Biddy
Phone the PD Helpline as well they will be open tomorrow or phone a family friend yes.........
To talk is to hope......
You are not alone.
Mike T
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