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d1d2d3
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125 posts
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Posted - 28 Jul 2012 10:25
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thank u i kown that wont be the frist or the last it just brought it all back
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turnip
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Posted - 28 Jul 2012 12:46
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D1D2D3
if you want to talk about it feel free to email.
if you don't then thats fine too,
i've been married 30 years but fingers crossed so far things have held together.
best of luck mate
as they say here in oz.
t
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Vivian
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Posted - 28 Jul 2012 21:25
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Hello d1d2d3,
I just wanted to say how sorry I am that you are in this position, my husband and I have been married for almost forty seven years and he has had PD for thirty of them. You are not alone which is very sad as you are still the same person you just have a few problems, it's a shame that some people can't seem to cope with the problems health conditions bring but it can happen to anyone. Please remember you will always get support from the people on here so you are never alone, I hope things start to improve for you soon.
best wishes
Vivian
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d1d2d3
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Posted - 29 Jul 2012 20:41
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just to say 10000 thanks
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jzygirl
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Posted - 03 Aug 2012 10:00
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all i can say is TIME
time to adjust.... time to talk.... time to look at benifits and then getting help... if you get the pd nurse to talk to you and your partner she might be able to help and advise you re benifits adaptions to house and help in the house.
as for housework as long as a little is done every day you should be able to pace yourself and not have to much to do in one go.... my old gran told me once that as long as your kitchen and toilet are clean you will manage.
i also note that you have young children you can make a game for them where they play with a duster my granchildren love that game and i get my shelves dusted at the same time lol.
but the most important thing is carry on talking to each other as you will both have fears and worrys that need to be aired.
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Shakenbutnotstirred
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Posted - 17 Aug 2012 02:04
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Often in life a major change can challenge a relationship ... be it a change in career, having children, financial stress or sickness.
I feel it is important to talk about what got the two of you together in the first place ... is that magic still there?
Often we need to re-asses goals and dreams based on changing circumstance. Men are hunters and gatherers and often find it hard when they cannot support their family financially.
Maybe try discussing a job from home (online) and ask his help to write up a new plan for both of you ... taking in to account everything and not just focused on your Parky Dx.
If he still resists ... I would question him openly about the long term survival of your marriage
I was married for 21 years and divorced 4 years ago due to the relationship being beige (A Billy Connelly term)... am about to marry again in 3 weeks and my wife is very supportive since my Dx 12 months ago ...
Good luck
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Golf Widow
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Posted - 19 Aug 2012 21:42
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Was diagnosed two days before I went on holiday with my family last week. Still can't take it in. I don't feel ill or anything. Just have this tremor. Had MRI scan yesterday. Back to work in September when the schools go back and I don't know what to say to the boss of the nursery. We are all carrying on as normal at home. What is going to happen to me, symptoms wise. I already have Type 1 diabetes. I feel very strange about the whole thing.
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carolineb211
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Posted - 20 Aug 2012 09:15
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Hi Golf Widow
Another teacher?
I work for the Education department as an Inclusion Officer (used to be known as Area Senco) now having been an Early Years Teacher for some years.
There are many teachers / ex-teachers on this site. Teaching seems to be a high risk category for PD!.
Give yourself time to take it all in,it can be overwhelming I know. It is impossible to predict how it will affect you because it affects everyone differently.
I am 53 and have been Dx for 17 months .I Still do everything i used to do,( but with a fuzzy head and a shaky arm).
For me, i told everyone I worked with straight away, it was easier. If I go into a meeting where there are people I don't know, I always ask if I can use the dictaphone as i have PD and can't write, everyone has been very supportive, I have been very lucky.
My employer has made loads of adjustments for me which is great and the good news is, the children don't care!! to them you are what you are and if you are a good teacher, they will love you anyway.
Good luck x
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Golf Widow
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Posted - 21 Aug 2012 16:22
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Hi Carolineb211.
Thanks for your reply. Didn't expect one so quickly. Have spoken to HR at work and she has been great. I have lots of decisions to make right now and they all seem as important as the next (all of them about my life). I feel sure (yet again) that PD is due to stress. I have been told Type 1 Diabetes which I have is also due to that. I want to leave all my problems at the door of PD and go off and start again. Some friends have said not to give myself more stress, but I feel it would help if I could begin with the biggest one and work backwards. Suddenly I have started to evaluate my life and look forward more. To make the most of my life if you get me.
Thanks for replying. It's comforting to know I am not alone.
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carolineb211
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Posted - 21 Aug 2012 17:15
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Hi again,
You are certainly not alone, there will always be someone here for you when you need them!
Try not to rush into any decisions, PD might be a progressive disease but it does not happen overnight. Take a good long time to make decisions that will have a huge impact on your life. Discuss it with family because, believe me, it will affect them too.
For me, work keeps me going. I would stagnate at home all the time with only the PD and housework to worry about !!.
I work term time which is ideal as I get regular holidays every 6 weeks or so to re-charge.
Caroline x
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