Hello Philib,

Welcome to the forum and the parky family where you will make many friends who will help you through this new path in life, it is not easy and has many ups and down's but it is surprising how you manage.
My husband has had it for 30 years now he was diagnosed aged 39 but he probably had it for several years before that. I was already disabled with a chronic back condition after an injury whilst working at the hospital.
We were very worried how we would manage but we have, until the last couple of years when my husband had to go into a nursing home, which is heart breaking after all these years but it had to be I just couldn't manage anymore.
I wish you well and look forward to seeing your post in the future
best wishes vivian

hi i was dx 2 years ago at 41...even now iv still not accepted it deep down...just try to live each each day as it comes and try not worry bout the future (i know that may be hard)..but thats how im trying to get through it...

hi 37 cricket
I am new to the forum I was dx nearly 5yrs ago aged 48yrs but boy I lived and partied like a 30yrs old as my girls have told me I have this theory life is for living and there is some poor B***er (excuse my language) out there worse than me. I like most people on here have told you none of us know how this disease will progress in any one of us.It is hard for you being young but as you can see from the posts that it could be 20yrs more or less before you have major problems. I have worked and was intending to work as long as i can, I have had my up's and down's with medication and as my consultant said to me last week he commented how pleased he was that i had stayed working for the last 4 1/2 years he said most patients retire after 1-2 years but as I was still young (the charmer) he really did say young I did not imaging it, he has tried to do his best to keep me active. over the years as symptoms pop up or deteriorate he has increased and changed my meds but being the b***er I am I have had some pretty bad side effects, I did warn him in the begining that i would not be easy and i am not and to be fair he had to cope with a year were i had breast cancer which was diagnosed 1 month after the Parkinson's ( complicated b***er or what, please again excuse my language) so now as from last week my option is Brain surgery nothing else left in the cupboard, due to me being a bad B***er there is no more pills left for me to try I take 41 tabs a day just been to surgery to have more added to help, as i am having rem sleep disturbance and i am bashing my husband (he still thinks i am not asleep HEE he could be right TEE HEE) but is this going to get me down, no it is not I have 2 girls 28yrs and 30yrs and from the start i have told them everything so when things progress they are prepared , you i am afraid will have to judge when to tell the children depending on there age and maturity, its not a death sentence and you need to make the most of your life and your life with the children. You have not mentioned your wife and how she feels, read all you can get involved with your local group and chat on here we are all here for you and i am sure I say this for all with Parkinson's then when you have exhausted your self and looked every thing up asked the questions you will then sit back and life your life disease and all take every day as it comes deal with progression and when you do things wrong do as i do tell them its not your fault you have a condition you know.i tell my boss daily when he tries to blame me for things TEE HEE, I could get away with murder because i have a condition you know. now if i have cheered you up or depressed you i will go because i could rattle on for ever if you do not comment then i know you think that I am mad the disease has taken over EEEEEEEH.

Hi Saintly 7
Read my post to 37 Cricket I will say the same I know you have had this pissy problem for 2 years but i am sad that you are not coping do you need a friend because you could have one mad woman as a friend or hundreds of them we are the Parky society YAA and we will drive you mad if you want OH no I mean we can support you . Seriously this disease can be hard to cope with and if you are up for it go out there and meet other old and young they all have a story to tell and one will be your twin who every word they speak you will say to your self that is me I do that and it will go on and on then you will realise you are not alone if you want friends they are here if you don't please please see your GP or Practice nurse or Parkinson's nurse you may be depressed or becoming depressed. Have you a family Partner can you talk to them ??. i think you will benefit from this forum if you let it and you have made the first step well done. i will go now as some one is bound to say get her off HEE HEE.

hu Cornette
so sorry that you have joined the club it must be devistating for your mum she must be worried for you i am 53yrs old and have 2 daughters one is 28yrs old she has coeliacs disease and has had a bit of a rough time but is doing well and a 29yr old who about the time I was diagnosed in 2008 had been suffering with a viral labrinthitis which lasted 18 months ! . I at the time did not help as i was diagnosed with Parky and 1 month later breast cancer but we fought on. My girl then went to work as an occupational therapist but over the last 5 years she has be troubled with inbalance and now has had an episode for 4 months resulting in ? loosing her job she is under a ear/nose and throat Dr I have asked for a neurology opinion, she had a brain scan 5yrs ago showing a spot of inflammation which they thought was innocent but a work friend of mine (I am a nurse by the way ) suddenly said has she got Parkinson's like you i shuddered and then felt sick I am now worried is this her problem ? I hope they are wrong but my daughter has said if it is she will become a cocktail waitress as she should be good at that if she has Parkinsion's so as you can you can imagine I laughed I cried then i thought if she can take this in so can I, so we will wait for the out come. Have you talked to your mum? does she admit to you how she feels about this ? does she use this forum ? if not get her on it girl tell her the mad women is prepared to speak to her oh no if you think that may put her off tell her there is some normal people if you can call Parkinson's suffers normal ( of course you can silly me). where do you live may be this site can get you involved with a local young person's group or a group you and mum can go together. There is so much out there for you and your mum so go and get it and enjoy life stick this sh***y disease in a corner and don't let it run your life( sorry for the rude comment).

I was diagnosed two weeks ago. I can't get my head around this; I'm incredulous, panicked and bereft. All those plans of skiing into my seventies, my retirement tennis career,my business but most of all my family; oh my young girls. I am forty and surly I shouldn't have this for another 20 years!!! Logans run!

I'm going to the gym as before although I am having to do more functional training on my core and scapula thanks to the second side effects of the PD, my frozen shoulder. The main symptom though is tremor in the left hand. A hard gym session makes the tremor worse but I feel a bucket load better. I still play tennis and when I do I also feel so much better. Generally I'm fine unless I am talking about it, or at the doctors when the harsh reality strikes and they start reading the list of side effects on the Rasagiline. Or watching MJ Fox videos, that guy is a legend but I don't think I could stand it, plus I'd be poor, juggling PD with trying to work... For the first time in my life I am staring into the abyss -what's the plan now CB?

Well its certainly altered my outlook on life. I used to think the NHS was too big and sucked money out of education, well actually I still do, just less so and now here I am taking their pills because my insurance lapsed. What a hypocrite!

Anyway I need to sort this out! How do you build a strategy though when there is no forecast. I am very surprised that their is not more information on rates of deterioration. It might be unique to each person but surly a population study would give some indicators. I find it impossible to believe there are zero correlations. I'm 40 now will I have a tremor for 20 years or will I be wearing nappies in two years time ? Do 10% show only minor symptoms for 5 yrs, is it 20% 50%, what difference does you age make to the rate of decline ? If there is nothing I think we need to start a website tracking this stuff - does any one know a good statistician .

I was diagnosed at 42, and told my boys within a week, then 3 and 7. I'm still around from day to day, I still spend time with them, we still have fun, but they understand when I have a bad day. Now 8 and 12, they both like to help me if they can, and we know that our time together is precious. Kids can cope with the truth, just be over the initial shock before you tell them.

Truth to tell, PD is boring, you'll soon find better things to talk about.