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Kate
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Posted - 06 Sep 2009 09:37
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Parkypete, I am a little surprised that your neurologist thinks you're too young for other medication. He must be thinking of levodopa and the advice: "start patients under 70 on a dopamine agonist and over 70 on levodopa" (sometimes the age is 65), but the last few years research has shown that the reasoning behind this advice has become less convincing and the DA's can give severe problems for some people. I am under the impression the majority of neurologists now prescribe the drugs that are most suitable for the patient whatever their age.
I was diagnosed at 55, started two years later on Mirapexin and 6 years after diagnosis added Sinemet. I find the Sinemet gives less side effects and more symptom relief.
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dejay
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147 posts
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Posted - 06 Sep 2009 22:08
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Mike
Not much I can add to ECDs reply which was what I think I was about to say... make sense.
From personal knowledge my Mum died at 33 very painfully with MS and my dad of alzheimers . Mum knew she only had a short time to live and at least as yet I dont have that prognosis, its still a pig of a disease, I didnt mean to say otherwise. Dejay
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parkypete
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125 posts
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Posted - 07 Sep 2009 09:41
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Hi Kate
Thank you for replying,you put into words exactly what i was thinking after reading some posts. can i ask you what strength mirapexin you were on before adding sinemet???Id discuss it with my neuro but he makes me feel like i used to feel in the headmasters office at school. you may boo hoo that but i feel thankful, having one as some people have to fight for the privelidge,so i say nowt just do as im told, he knows best, i hope, i wish you good luck in yur fight against this horribe illnesss. A T B PARKYPETE
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worrieddaughter.com
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Posted - 22 Sep 2009 21:40
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Hi, I too am new to this site and also worried sick about my mum. She has not beed diagnosed with PD yet but her GP has told her to expect it. She has every single symptom from tremors in her left arm and leg, shuffle walk not moving arms when she walks etc etc ,every symptom we have come across she has. we are trying to be hopeful and positive as for the last 4 years she has been suffering with frozen shoulders in both arms, we have thought the tremors and stiffness was down to that and are just hoping and praying she does not get the diagnosis she is expecting, but on the other hand we worry about what else it might be!! mum was always so active and worked so hard, was so busy now she has been off work for months and just keeps falling asleep, she really struggles to even get up from her chair.
this site seems such a help to every one who uses it, and reading through your messages has been a great comfort. it would be great to hear if anyone has had the similar symptoms as my mum and if medication has relieved the symptoms, especially the stiffness seems to be getting her down mostly, she finds it impossible to do every day tasks like washing, for a very long time she spends so long taking a shower and cannot wash hair/ body properly and cant get dry because she is so stiff.
i feel awful writing on here when most of you seem so positive and my mum hasnt even been diagnosed. but i am worried sick as i dont know how she would handle the news if she got it.
thanks for reading, if you have any advice it would be greatly appreciated.
thankyou x
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