Hi again.

September is only 7 weeks away, so don't panic. Don't forget it's the holiday period, too.

It sounds to me like you have PD, but they can't give you PD drugs until they're certain, or you could end up even worse! Your GP can't be expected to be an expert in every specialty he comes into contact with; his job is to correctly identify which consultant you need to see (in this case the consultant neurologist) and arrange for a consultation. Th GP will subsequently prescribe the medication which the neurologist recommends, following completion of the diagnosis process.

Scans are notoriously difficult to understand and interpret, and consultants frequently discuss specific cases amongst themselves before final diagnosis.

Hang on in there!

Ray.

Hi Terri,

I do feel for you. I went through all this eight years ago. Because of the long wait for a scan on the NHS I went privately and, of course, got the result and disgnosis within a week. The consultant then sggested I see him on the NHS for subsequent appointments. However, I have only seen him twice sinc then. My main support is from a fantastic Parkinsons specialist nurse who I see twice a year at the hospital. I think its terrible that you have to wait until sept. It might be worth seeing if your neuro sees patients privately. As you have already had he scan the actual consultation shouldn't be too expensive. Good luck
Janey

hi ray of sunshine thanks for youre help but seen a neuro told me i had pd but wanted me to have scan as i was having other problems so wanted to rule them out does this seem normal practise to you its all getting out of controll thats what i feel like cant move hardley constant pain stiff as a board hand hand tremor falling over wanting to weeeee all the time my eyes keep watering and running forgetting thing all the time even my kids name feel so fed up just wish it was sorted once and forall my hand keeps spasming up why o why does it take so long[ any way thanks ray of sunshine for letting me rant

hi janey i thought of going private my gp told me not to but might consider it now so fed up thanks

MY first few consultations were private, then I switched to the NHS, with the same consultant.

Seemed like a good route, & worked out all right.

HI TERRI just a quick meesage to let you know your not alone i too only sleep a few hours here and there (cat napping).Has the doc given you sleeping tabs they usually give me 4 hours uninterupted sleep but feel like %$£" the rest of the day but no more than usual

going private had enough all this messing around had enough

Thinking of you Terri - know exactly what you are going through - keep us posted. Remember we have all been there. When is your appointment?
Janey

Hi Terri,
I was diagnosed two & a half years ago,went to the GP with a scuffing foot it took about 9 months to get a decision. Have you tried getting in touch with the neurologist his secretary will try to block, but I threatened to just turn up if I did not get a call back - it worked. Also remember you need to ask questions, write a list of questions. I left spaces asked for and got the consultant to write the answers then you can not forget. Also involve you partner I left a letter allowing my wife access to any info about my PD.
Good Luck I know it is tough but I'm sure you can be tougher.
Warlock

we must have a very good health service in cumbria as i got my dx the same day i was seen by the consultant he could tell from a physical examination, then he sent me for a scan not on the same day but i did,nt wait long this was just to rule out other causes, then my pd nurse visted me at home the following week and i see her every 4-6 months, i see the consultant once a year, the treatment you have had terri is disgusting a experianced neuro consultant should be able to tell you the same day, and any drugs they said they were going to give you, you should have got right away if my pd nurse alters my meds she just contacts the gp who writes a prescription right away i dont have to wait 7 weeks i dont understand why you have to wait so long for a dx i think i would be asking a lot of questions as to why you have no dx yet, stick in there terri chin up things will sort them selves out sue.