please help went to the doctor for something to do with my leg he said to me you have a very bad tremor in youre leg and hand sent me to nuero explainded to them about my hand and leg plus my bladder problem and my lack of memory and that my hand keeps going into spasams so does my leg also have problem walking so stiff getting out of bed is a nightmare
lol
my husband told her that i forget thimgs and say thing cant remember they did some test like finger to nose and straight walking to wich i can do none with left side of body and right my name left there with no answer to what the problem is after being told that i had likly got pd from another doctor what does anyone thinh is this normal practise ps sorry about the spelling cant remember how to spell

hello terri,I am sorry that you are panicing. It would seem to be very common for people to go to their GP for some reason unrelated to their tremor and to be referred to a neurologist. Sometimes this can invole a very long wait and I think it is good that your GP picked up on it.
The finger to nose, walking and writing tests are standard.
I like your husband already for being there with you
I can only speak from my own experience, but it is difficult to get a definite diagnosis.
I do hope that now the ball has started to role that you will be able to get some help with your problems. And don't worry about your spelling
With my best wishes

Hi.

Originally I went to my GP with pins & needles down my left arm, thinking I might have a circulatory problem, i.e. a heart attack in the making. However my GP was immediately suspicious and sent me to a neurologist who examined me and said I had all the classic symptoms of PD - tiny handwriting, stooping, shuffling gait, tremors, poor sense of smell, etc.

Nonetheless it was a couple of years before he would commit himself to saying it actually WAS Parkinson's. Before that he just called it "a Parkinsonian condition", because there are apparently so many different complaints which all exhibit the same (or very similar) symptoms.

I understand they can only be 100% certain whether their diagnosis was correct or not at post mortem!

Ray.

Hi terri like every one else i thought i was just going with a trapped nerve in my wrist yet i always had at the back of my mind it could be PD so although it was scary it wasnt a shock. Take care chris46

Hi terri,

I too went to my doctor with a list of weird but minor problems and got sent to neuro. He organised a dat scan that confirmed my parkinsons. Although devasting, it was good to know definatly what i was dealing with and left no guessing. I suggest you ask for the same (but be prepared to fight for one as they are expensive!) Best wishes to you and your supportive husband.

hi terri,


what a lot of people i have heard of with pd have had to wait a long time for a diagnosis i went to my gp was having problems with my right hand could,nt move my fingers very well he suspected pd and refrered me to a neuro within 6wks i had my diagnosis not what i wanted to hear but at least i knew what was causing my probs,they sent me for a scan just to rule out anything else have you beed see by a consultant if you have and they have,nt given you a answer then seek a second opinion you can ask your gp for a referal to another consultant, after i was diagnosed it was 2 yrs before i was seen by my specialist he is,nt a neurologist he deals mainly with eldely patients but also with pd patients as well but after the first visit i was then only seen by the pd nurse, so i went to my gp and asked for a referal to a consultant neuro who i had heard give a talk on pd but he practises in newcastle about 2hrs away from where i live but it is worth the traveling only once a year he and his team are wonderful his name is proffesor david burns better known to his team as proff burns maybe its worth a try for you to see someone else as well get a definite dx good luck sue.

thankyou all for youre kind replys told on monday that as i am so young only45 hahaha that it is unlikly that i will be given drugs as they try to keep them till im older and in greater need of them is any one else the same i have been given valium twice daily is that right andcoadine for the pain just cant get my head round all this thahkyou for all youre help

I was diagnosed 3 years ago at 48. started on Ropinirole straight away which allieviated lots of my symptoms. The choice for medication is the patients not the consultants, their choice is to explain everything and advise. I did have symptoms for about 5 years prior to diagnosis so was happy to start medication on day one. Good luck

can anyone tell me what is best course of action go to bed at night cant nove roll over get up in the morning so stiff in my anckles back and hands brings me to tears every morning stoop like old women for best part of he morning till can get moving is any one else the same can you tell me what you do to get rid of it or are you taking meds for it

at my wits end