Ok little change of subject, my wife just made me one of my favourite breakies.
As she put it down in front of me I came over exhausted, neck achy and felt sick!
What's that all about?

hows your temperature?

Having a hot flush as we spk.
Thing is my gp is useless and I haven't been put in touch with any pd specialists, just my neuro and he is harder to get to then elvis.

afraid dont think ropinerole agrees with you, dont stop it but i would phone the pd helpline or nhs direct to be sure. dont want to cause you to panic its probably not serious but it would be nice to be reassured by a professional. do you have a thermometer? if so what temp are you?

Good idea the thermometer will try and remember that the next time it happens to my husband .

Before Parkinsons ,My husband thermostat was brilliant was never too hot or cold .

Rarely wore a jacket

These days he is either too cold or too hot . Will get cold without realising and then take ages to get warm again .

johnnie = you can get electronic ones now that you just press against the temple for 3 secs. now you come to mention it, if i get up at night and chill down it takes ages to get warm again in bed - and i used to be a rather hot person (only thermally i'm sorry to say).

HI guys
Just started Ropinerole xl myself , Im on my 2nd week of 2mg and moving to 4mg next week. Cant say I have noticed any change in temperature but interested in anyones views as to if and when they saw an improvment in symptoms when taking Ropinerole .
My problem is tremor and stiffness in left hand / arm. No improvment yet , or am I too eager, and hoping this stuff is a miracle cure !
Symptoms probably a bit worse if I'm honest

cheers

Crusader

Crusader, I just went up to 6mg tonight. Have had 1 week on 2 and 1 on 4. I 'think' I am noticing results already. Certainly it 'feels' easier to walk, balance and orientate. De finitely notice a slow down at 5-6 (tak e my pill at 7). Have had some side effects, temperature, sleep deprivation and nausea once. Tbh the side effects I can live with for now, especially since I can see improvements.

Turnip, thanks again for your response. My temp has always been a degree or so above what is considered the norm. Have had a few hot flushes since starting the pills, though as I said if this is the price of progress, it's worth it. I see the neuro in a week and will tell him all and see what he says. Will keep you updated.

i believe the average effective dose for ropinerole in tests was about 14mg per day. slow release is probably a bit more. some people need very little.
personally i would be very dubious going over 20 due to increased risk of OCD. thats just my opinion but one i think shared by other ex-users and users.

it is defenitely not a cure and is mostly seen as a stop-gap until time for levadopa and then it is used as a adjunct. though some people keep it on as the only med for many years.

WATCH OUT FOR THAT OCD!

good luck. will also help pay off GSK $3b fine.

I recently went through the 'initiation'into ropinerole and I found it useful to keep a diary of medication and side-effects. Each time you ramp up the dosage I found that there were new and exciting effects on me, everybody will tell you that it effects them differently. The side-effects do lessen, I am now on 8 mg and things have stabilised considerably. Have a good trip.
CW