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neenag
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Posted - 20 Jun 2012 22:28
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you are so right and i appreciate every comment and respect peoples views. just wish I got this much attention from family      
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ali j
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Posted - 21 Jun 2012 06:15
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hi neenag,i did rite a post to you few days back,from me heart,and hopfully it may of put you at ease,but me post disapeared,i did 10 lines and then boom ,off it went,and neenag,im sorry but i was havin a bad day with hands and could not rite it agin.anyway everything i was goin to rite,in a way has been said now by all other posts,which is great,your gettin the surport you need from us,we are all stickin togeather and helpin one another out.dont be ashamed of havin a moan on here neenag,cus we dont see it as a moan ,its a bad day ,wot we all get im afraid,and just need a bit more surport to pull us along this journey with pd.im not goin to go on neenag,but will just say im only 43 and been dx for 11 half years now,and got other ill health probs as well,ive had me years of bad,belive me,anyway as your aware,suport you have,and looks like you have made some nice friends as well,keep postin neenag,and we try to make you have some beter days,and us as well 
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Posh Bird
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Posted - 21 Jun 2012 08:28
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Hello and welcome to the forum
I was dx at the age of 48 and that was 5 years ago.
It is a hard thing when thinking about the future, just try and take one day at a time. I have my good days and I have my off days. It can and is so easy to get down and depressed with this cruel disease.
It is difficult also for family members who are unsure what to say and they too are trying to cope with the dx of your Parkinson'S. Enjoy your family and beautiful grand children. I have a daughter of 36 and a gorgeous grandson of 5 and they are my reason to keep going. Keep posting and let us know how things are.
Love PB x
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neenag
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Posted - 21 Jun 2012 19:19
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Hi guys
Guess who fell over in public today!!!! Ive got a badly bruised thumb , broken nail and a bruised knee... but... I found out I still got a weird sense of humour. I saw the funny side cos my ample frame and my brief case cusioned me well lol     thankyou my pd companions... I think you are ALL fantastic xxxxxxxx
neenag
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BJS
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Posted - 21 Jun 2012 21:42
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Hi neenag I constantly catch my toes and stumble although my balance is still good so mainly remain upright
The wi-fit is supposed to be good if you have balance issues so if you have one!
On your other worries remember don't dwell on the past; live in the now! the future is a foreign land to everyone.
Be good to yourself!!!
BJS
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neenag
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Posted - 22 Jun 2012 22:56
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guys let me tell you a little about myself whilst i am in a good place, I currently work as a team manager supporting people with learning disabilities,challenging behaviour,epilepsy and autism. We teach life skills and integration and acceptance in to society. We believe everyone should have an important part to play, however small,in society and be heard as an individual. My current employers accept my disability and listen to me when I have off days.Parkinson has robbed me greatly of my former life..but..life goes on,,unless im having an off day.
As time goes on you will see I have a strange sense of humour..daft some days..but this has helped me through many trials in my life. I cannot stay negative for long.
My 8 year old daughter came home upset one day because she came last in a race.I asked her if she ran all the way, she said she had. I told her not to cry but think of a child who had lost their legs....they would have been happy just to have run the race . she thought a while and said"mummy you are right", I hope she grows up being able to reason well and not be selfish.
finally....I do hope Im not too nutty for you all lol     
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neenag
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Posted - 22 Jun 2012 22:58
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By the way... my bruises are looking goooood !!!! 
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BJS
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Posted - 22 Jun 2012 23:06
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hi Neenag well coincidence abounds I am a social worker IRO in children's services I too have a strange sense of humour comes with the job! So really understand my kids now 21 and 25yrs but the indoctrination works they are nice folk! good luck
BJS
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glenchass
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Posted - 23 Jun 2012 09:56
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Well what a coincidence I was a social worker with children's services for 26 years before I retired 4 years ago, due to my PD. So I fully understand the dark humor thing, I think we develop it to protect ourselves from some of the more nasty things that we come across.
Wonder if the stress that comes with this sort of working environment has anything to do with our conditions? Interesting!!
Glenchass
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neenag
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Posted - 23 Jun 2012 10:44
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Hey you two can be my side kicks then lol I do feel stress has a big part to play, My childhood and first marriage left a lot to be desired..in fact..its a wonder im not a patient somewhere The sad thing is I met a lovely man and settled to a happier positive life only to start with pd symptoms within 2 years. It seemed once my body wasnt fighting any more stress pd crept in.. but hey ho...life!!!
Neenag xx
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