hiya tuppence,welcome to puk forum,im ali,ive been dx with pd for 11 half years im 43 years old.vivian is quite rite about getting social worker,etc involved.the ideal option is for both of them to go in a home,may be with the proffessionals comin to visit mom and dad they could confince mom its the rite thing to do.i dont wont to sound harse,but some times we listern to some one else rather than out familys.the other option is they stay home,if all he memorys are there and there is no budging her,there are pacakages that can be set up for care around the clock,cus both mom and dad are now at stages in there life they both need help.my mom and brother live togeather and have various illnesses,and have this pacakge,they have total of three carers,so not many faces to remeber,they had to fite to get this pacage mind you they dont just hand erm out,which is harsh cus there so many people need so much help now,and struggle along ,and carnt get by,but the staffing and angerncies just are not there im afraid.its getting you down ,helping as much as you can,and you need some pressure took off you as well,ilooked after me dad for many years,and i no exactly how your feeling.anyway good luck,and please keep us informed wot has been chosern and how you all getting on x

Thanks for your replies.Have found a lovely care home very close to my home which is so much better than all the others I have seen.Lovely staff who serm to understand the problems with Parkinsons besides just the motor difficulties.Next hurdle is to get Mum settled as she finds new places v stressful and becomes very confused.If anyone has any experience of someone woth Parkinsons settling into a cate home who gets confusef and hallucinates adwell as had delusions at times I would love some tips and advice on ways to help make transition from home to care easier.

Hi all,

I am Malika and a niece of a PD sufferer -for the last few weeks I have been reading your posts and it has been a god sent -I look forward to learn more of the desease and moreso find information and support.

kind regards
Malika

Hello Malika,

Welcome to the forum, you will find a lot of support and information both on here and by downloading the fact sheets from PDUK also found on the web site.
Do post any of your concerns as there is always someone that can help.
best wishes
vivian

Thank You very much Vivian!

I have pleanty of questions - so indeed, would appreciate all the help I can get.

kind regards
Malika

Hi my name is Heather i am 53yrs old and was diagnosed in Feburary 2008 and 1 month later I was diagnosed with breast cancer, 4+ years on i am ok with the breast cancer but the Parkinson"s has progressed .I work as a Practice nurse at my local GP"s I have worked there for 22yrs and they are fantastic Employer's but I feel i will have to give up the job due to the deterioration. i look well but as many of you know that does not tell the full story as my girls say you hide it well mum.Well yes i do but in my 53yrs i have not been selfish i have put my family,friends and work 1st but now I think I need to come first, if i retire i can join the swimming group and the walking sessions put on by my local PD group and be more involved with the group and the support they can give me, and possibly i can give them. I know I may start to feel better physically if i do this and give me time to do what I want to do before the condition limits me.I feel as a professional i should know it all but I don't it is the little things my patients who have PD say that i think oh yes that has happened to me so its that connection with other suffers that lights the light bulb.So hence the joining of the forum i realised i should have done this before but I was getting on with life and although i still intend to still do this i feel talking to and supporting others and getting support from you guy's will be of great benefit. I know I go on but thats me get it all out in the beginning so it is out there and now I can get on doing what is needed.So I hope I make good friends and contacts through this forum which i am confident I will .Thanks for listening hope to hear your replies.

Hello Mommah,

Hello and welcome to the forum,it is good to hear that you are going to join the local branch because when I was involved with mine people often came at a late stage and wished they had come sooner. It not only benefits you but also you can help with the running of the group even if only in a small way such as welcoming people through the door which I feel is so important. I am sure you will enjoy life after work and perhaps you will even feel better as most people do especially for the first years or so. Your experience as a nurse will also be very useful and I am sure the branch will be very happy to see you.
There are plenty of people on her that will give you useful tips on living with PD and there is also a lot of poetry and humour.
Welcome to the Parky family,
best wishes
vivian

Thank you for that warm welcome I have attended 2 meeting the first time I was at a lecture by my consultant and the 2nd I am embarrassed to say i was due to see my consultant that day so i had the day off work to attend the appointment so i thought I would have time to attend the meeting that was on that day,there was a lecture and advice session on as well so my hubby and i attended to find they started with the general social meeting first which was great except they ran 2 competitions of which my hubby and I won prizes then to my horror the time had gone by and we had to leave for my appointment at the hospital I felt like we had hit and run with the goodies, fortunately a patient of mine and her husband was there and they explained my sudden departure. I have not attended since due to work commitments the meetings are at 1-30pm and i work to 2-3pm daily so I generally do not get to the meetings which will change if I retire as will the ability to attend other activities that seem to be mornings or early lunch time. I will stop rattling and hope to be in contact soon.

Hi my name is Sasha and im on here because my dad has just recently been diagnosed with parkinsons, which has been a shock to my family. I dont think he has got used to it yet - it was only on Wednesday :(

I need as much advice as I can get from different people - about how best to help him cope.

You have come to the right place for support Good luck