Hello Asyr, welcome to the forum. I'm sure that you will find plenty of support and any questions that you have regarding PD can usually be answered here too. I have been dx for 12 years and I gained more information from here than from any of the medics. i hope to see you around.

glenchass

Hello Everyone! I am new to the forum. I don't have Parkinson's Disease but my sister had it for many years. I wish she had known about this forum because on her good days she would have really enjoyed it. She died last year of a heart attack and I do miss her, even though she lived many miles away from me in Aberdeenshire. I live in Yorkshire.

I wonder if you've all heard about the study that is being done into PD by Newcastle University and other medical research centres. I expect you have. It was through their newsletter that I discovered your forum. I have been a guinea pig for some other research being done at Newcastle and they sent me the information about the PD study. That led to this website and forum.

Hello Perdita and welcome to the forum.
It's a shame that your sister didn't know about this forum I am sure she would have found it very beneficial. Sorry for your loss it is difficult when you have to come to terms with the death of a loved one but I am sure you have lots of great memories.
I am 51 and diagnosed last month with Parkinson's, and know how difficult it is to be far away from my sisters - I live in Aberdeen 1 sister is in N.Ireland and the other in Highlands.
I am waiting to here if I am suitable the Tracking Parkinson's research hopefully hear soon.
Hope to see you around the forum

Take care

hi perdita,welcome to puk forum,sorry to hear about your sister x hugs x,im ali ive been dx for 11 half years im 43 years old,there is so much to no about parkinsons,as im sure your a ware of,this forum will give you surport and good friends to be made.being a member of puk,you will recive magazines with alot of info about wot is goin,hope to see you around the forum x

Welcome to the forum Perdita, I am sorry to hear that you lost your sister. I lost my sister in February this year and I miss her dreadfully, so my thoughts are with you on this.

Thanks also for your continuing support in respect of PD research, we need all the help we can get in the search for a cure and it would be so easy for you to get on with your life now that your sister has gone and PD isn't so high on your agenda.

I hope that you get a lot out of the forum but I can't help thinking that your sister missed out on an important opportunity to become part of a caring and supportive community. Take care i hope to see you around for an exchange of views ect.

glenchass

Hello to all,
Have been around the forum for a number of years, decided to jump into the forum instead of just dipping my toes in it !!

My Full spec..........

DX 13 years ago when i was 30
Age now 43
Age when DBS fitted 38

Had most pill combo's but eventually sent me dyskinetic so in Feb 2007 had a
Deep Brain Stimulater put in down at UCL in London under the PD SURG trials.
The DBS took some time to get the settings right, but now i couldn't be without it, occasionally i turn the DBS off to see what the UnDBS'ed me is like, know that is sobering, after 2/3 minutes im a wreck, it makes me really appriciate it.
Still taking some pills but nothing like the 30/40 a day i used to take pre-DBS.
Just trying to cut back on my Neupro patch and my sinemet intake. I've been badly overdosing on the sinemet causing me to be impulsive,reckless, hypersexual, anxious, paranoid etc.........

Anyway thats where im up to, what about you.................???!!!

I have just been diagnosed I am 64 and shocked to say the least
Ihope this forum is a source of help to me

gcy
You are in good company here. In and around the forum you will find two of the finest source of support for people affected by Parkinson's. The first source of help is the gang of forum inmates who have been where you are now. You can ask anything and you will find someone here who can advise you based on real life experience. You can rant, cry or laugh here too. The other key source of help is Parkinson's UK helpline which is just a phone call or an email away. The boys and girls there can help you with any aspect of life with Dr Parkinson.
I hope you find the forum as supportive as I have done. I was dx 7 years ago at age 39 and I keenly remember the shock, the fear, confusion, tears and questions, questions, questions.
I hope we'll see more of you around the forum.

Elegant Fowl

Welcome to the forum gcy,

I am sure you will find many new friends on here and lots of support, the many members on here all have experience of one sort or another with their pd so I am sure you will find the answers to many of your questions.
Keep positive thoughts if you can and in time you will adjust to a slighter different life but with plenty of people to cheer you on. Do look on the other threads such as creative corner and social club because just reading them will give you a lift.
best wishes
vivian

Hello Titania......great name, your counterpart Titan is to be found in the Creative Corner.I was dx'd 5 years ago and have experienced some of the side effects you mention.I am told no two PWP's have exactly the same symptoms but when you scratch the surface many admit to similar lists to yours.
Are the side effects continuing or have they abated since you op? I changed meds and despite the urges I can now say that I am back in control with the exception of my ambition to rid the world of chocolate!
With regards to hyper sexuality why not seek out and post your opinions on the Sex Life entry where your experience would be most useful for the many who are now embarking on that journey.