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Hey folks - newly diagnosed

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tapehead81

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16 posts

Posted - 02 Sep 2011 12:49

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Hi

I have just been diagnosed with YOPD at 29 (going on 30). Like many people with PD, my symptoms started at least a year ago or more, such as stiffness, speech, handwriting, slowness of movement and lastly - tremor (all right side).

I went to my GP in March and was referred to a neaurologist. After an MRI to rule out other things I was later admitted to hospital where I had MANY tests over a week period.

After they all came out clear, I was put on a course of levodopa (Madopar)which after a couple of weeks or so started to have positive effects - increased movement inc better gait, hand movement, more arm swing, better handwriting, better speech.. not back to 'normal' - but better than it has been.

I went back to my neurologist this week and was diagnosed with YOPD, which I thought he would having researched PD and looking on this site.

Now its time to properly start to come to terms with it, and look forward in a positive way.

Parkinsons.org.uk has been so so useful and the people on this forum have been very helpful and caring! So thanks.

I will be on here often, as I have been over the past few months.

Best,

David smile

sallymac

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149 posts

Posted - 02 Sep 2011 13:10

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Welcome!
Like you I'd diagnosed myself before the docs did. It was still a shock though. I was 52 but still felt young!
Lots of suppport here from people taking different approaches to managing. My version is the complementary medicine route; works for me but not everybody's way.
Very best wishes
Sallymac

Lin2

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33 posts

Posted - 02 Sep 2011 17:36

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Hi David,
Welcome! Am new here, too. Was dx'ed in May with YOPD. My MDS is real big on exercise and I have to agree that it makes me feel better. Glad the meds are helping you feel more like you. You sound like you've got a good attitude which is critical. Best wishes, Lin2

spam95

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361 posts

Posted - 02 Sep 2011 19:49

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Welcome, hope you feel ok and can get to grips with the future you have. we will offer any support you need.

Jo72

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151 posts

Posted - 02 Sep 2011 23:47

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Hi David
Welcome to forum. I too have YOPD being in my 30s, diagnosed two years ago but had symptoms for 6 years. Medication is a marvellous thing and I am now enormously more able than i was last year, able to work full time and do most of the things I used to do. You sound like you are facing this with determination and that will serve you very well. There is loads you can do to take care of yourself and recover from the diagnosis which, whether it be a shock or not, is a big deal, a life changing event. Very best wishes for you in your coping with this and getting on with life.
Jo

ali j

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4476 posts

Posted - 03 Sep 2011 06:42

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hiya david welcome to the forum ,im ali i bin dx since i was 31 im now 42 ,as u most prob no there lot of surport here on pduk and good friends also to make,i hope to see u around the forum ,when u passin the cafe pop ur head in for a brew ,we dounna bite xsmile

glenchass

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810 posts

Posted - 03 Sep 2011 10:31

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Hello and a very warm welcome to the forum David. I'm sorry to hear about your dx at such a tender age, but I know that you will get support and advice on here.I was dx 11 years ago, so a bit of an old hand at this now, any questions just ask there's always somebody around that will be able to offer some answers, that's the good thing about having contact with other pwp. I hope to see you around the site.

Glenchass

Drobb

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301 posts

Posted - 03 Sep 2011 11:53

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Hi David & welcome, I'm a young onset pwp also although i'm 48! but still very young at heart! Massive of help and support to be found on heresmile Happy to chat and share info anytime. Best wishes

David - Jo72 - Lin2 and any others
has anyone signed up for Moving Forward Together event in Stratford-Upon-Avon?

I look forward to meeting you if you have.

Diane

rubbish

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197 posts

Posted - 03 Sep 2011 18:07

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Am I the only one who thinks davids symptoms can't be parkinsons ?

rubbish

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197 posts

Posted - 03 Sep 2011 23:59

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No need to go on meds to diagnose - neuro will be able to uncover symptoms - speech being effected is one of last symptoms - not early. Also if parkinsons dopamin would work almost immediately on level of symptoms david describes - not 2-3 weeks