Hiya my name is ELliebeth I feel that this site is a real lifline for people with Parkinsons Disease. I felt absolutley mortified when I was told I had P.D. A Typical. 3 months ago. I think Im just about coming to terms with it now. I feel very positive and have adopted the view that I can accomplish anything with a positive mindset. It certainly all makes sense now with all the symptoms before I was diagnosed where very scarey indeed. Over the last 12 months the symptoms have got worse (Tremor in my legs) Weakness in my arms sholders and legs ooh and being glued to the spot) that has to be the scareiest. I have found that know | am on the meds Requip xl 6mg that I can type again. My walking has improved but I still have to use an electric toothbrush to brush my teeth. and my daughter makes scrammbled eggs as I cannot whisk anything. somedays (good Days) I can grate cheese. whoop whoop This condition has changed my life. I would like it very much to share stories and chat about the condition thats why I have joined this Forum

hello elliebeth
welcome to the forum. its a bit of a quiet time of day and i'm sure you'll get a lot more response later so dont fret!
cheers

Welcome elliebeth,

Just recently been diagnosed myself, I like yourself, have a tremor but mine is in my right arm, I also have some stiffness in my neck/shoulder. You will find this forum a great comfort to you as I have done, it helps to share worries and hear from other people in the same boat. Keep positive if u can and draw comfort from the fact that youre not on your own

Milly xxxx

Hello Ellebeth,

Welcome to the forum, I am sure you will make many friends on here who will no doubt have some of the problems you will have. Keeping a good positive frame of mind is so important so keep it up.
My husband has had PD for thirty years and is one of the early onset group which means they are diagnosed before 40 years old. He still plays scrabble to keep his mind sharp and many other quiz games, he has had to give up some things but still has plenty of fight in him and will find something else to replace what he can't do.
Best wishes for now
vivian

Welcome Elizabeth,

you have come to the right place for advice and as Vivian said retaining a positive attitude is the key to how you will deal with this condition.
I would also recommend that when you have some time on your hands that you trawl through old posts. This whole site is full of the experiences both good and bad of other PWP's (Person With Parkinson's.)and an awful lot can be learned particularly with regards for things to be on the look out for.
You did not say what age you are and pardon me for having the temerity to ask a lady for such detail. The reason I ask is that PUK have branches up and down the country where you can meet and learn first hand. Most branches offer talks on many and varied topics and have dances and outings as well. They also provide access to an Information Support Worker and the thing I find of most benefit is simply the comradeship of other PWP's. No one will ever understand you better than an other PWP. The age question is about the fact that many branches also have Working Age Groups who offer evening meetings.
The best thing I did on being dx'd was to join my local branch although I do understand that what worked for me may not for you.

Sorry Elliebeth, I will be happy when we get the facility to see the posts at the the same time as we are replying.Grrrrrrrrr.

hiya ellibeth welcome to puk forum,as you can see there is good surport here and nice friends to be made,im ali,and ive been dx for 11 half years,im 43 years old.ive been a member of this forum a few years now and as times gone on there has been so many stoys from community members,so make you cry some make you laugh,and i guess thats wot it all about ellibeth we all in the same boat,and here for one another.it good to here you have apositive attitude towards things ,that helps alot.im sorry though to here that symtoms are startin to apear more than you may of thought at this time,but there is lots of info on puk forum,and on the helpline also who will guide you and give as much info as you require.anyway nice to see you ,see you around x

Hi Bogman, I agree about not being able to see the post you are replying to. Its so easy to go off on one and then realise you've not really responded to what the other person actually wrote.

Try this
Log on and start your reply as normal. Then use your browser to bring up a duplicate Parkinsons page with the post in question but don't log on. Now right click on a blank part of the strip at the bottom where the web pages are named and you choose "tile windows vertically" or "horizontally" to get the two pages side by side or one above the other. Obviously you have to minimise any other web pages you may have open so they don't clutter up the screen. When you've finished you right click as before choosing "cascade the pages" and it should go back to normal. Having said that mine does not always quite go back to normal and I have to keep maximising web pages but hopefully this is just a quirk of my computer

Hello Elliebeth like you I was recently diagnosed with PD, and also similar to you I knew beforehand something was wrong, I think and hope I have now accepted the situation.
The thing I worry over is walking I also have ostioarthirtis and barely walk and all the advise I am given is to walk, I wish I could.

My are left hand and jaw with a tremor (get them going in opposite directions and they clean teeth), some difficulty with constipation, also very,very slow.

But I am not going to let this problem ruin my life.

Tony.

Hi Elliebeth,
Like you, I was only diagnosed recently,so this is all new to me as well. I can only say that the immediate welcome I got was astounding to me!!!!! You will ameet loads of lovely people onn this forum as I have and get lots of good advice as well.
Hope to hear from you again soon.

Lentil