I politely asked for a reference, but you chose not to give it to me. I wanted to study the EXACT document you were looking at, so as I could maybe join you in your fight!

I hope you have a lovely Christmas and a very successful New Year.

You too.

Apologies if I was wary as a result of past hostility.

O hi everyone, hadnt read any of these threads before. Just to add a little bit of what me and h did. We started off being very wary of all drugs and yes the neuro ridiculed us and we did the herbal route. After a couple of years we accepted a dopamine agonist which did immediately cause lots of confusion and hallucinations so in agreement with neuro we stopped that and went onto madopar, this is better although my h does suffer from hallucinations, but then again without the madopar he would be frozen.
Have developed vg relationship with neuro and gp this doesnt mean we do everything we are told and we discuss everything with them and we do seem to be given the time to do this. In the end I believe what our neuro has said that pd is a minefield of afflictions and you can have probs from the pd and probs from the meds and you might not even know what is causing what. So I think everyone's experience is individual and we need to have discussions with our medics and come together to individual decisions. Asking lots of questions of the docs can be daunting but we found it led to a better relationship in the end and gained their respect more.
I believe my h must have a tendancy to hallucinate and the meds bring it out more, the saving grace is he copes with it calmly. I have a friend who has been on dopamine agonists for decades and she doesnt hallucinate or have any of said disorders and without these meds she could be very immobile by now.
I agree we cannot make blanket decisions. We can make ourselves aware of stats and then make individual decisions and find doc where there is mutual respect. Hope that is a little bit helpful love all sunray

Just a festive reminder that if you have anyone close to you whom you suspect MAY suffer from DA-induced OCDs, keep a very close eye on them over the next few days, and - where possible - prevent them from having any access to cash or other assets.

Otherwise, have a good holiday!

I wish everyone on the forum a happy Christmas and send my love and thanks to the many who have cared for my husband and me throughout our journey in the the aftermath of the DA / OCD nightmare.
Here's hoping 2012 brings us all improvement in our health and advances in medication research.
Love, GG

and - where possible - prevent them from having any access to cash or other assets.


I can think of a few people who dont have Parkinsons to whom that could also apply to

A Merry Chrimbo one and all and here's wishing 2012 will be a good'un

Yes Kyloe, but this is a forum and a particular thread for those who have Parkinson'd and suffer from the terrible side effects of OCDs as a result of taking DAs.
By all means continue monotoring those in the non-Parkinson's community but consider other more appropriate venues which those troubled by gambling etc may visit.
GG

.
Well said GG.

I hope you had, and continue to have, a well-deserved, peaceful Yuletide.

May 2012 bring lasting happiness and tranquility: no-one deserves it more.

RoS.

xxx
.

i saw me neuro,and she agreed with gp and me that the das are effectin me with my prob,she is strugglin though to no wot other drug to put me on that will not cause effects aginst all me other cus im on quite alot for other health probs.thing is i find the das help me pd,which is the sad part of this,but it causes me other isuses,which has to be tacked i think beofre it spirals out of control even more,its already makin things harder for me,and now cus xmas is over and january goin to be here soon ,may be worser