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Any donations welcome.

Make cheques out to Church of Aloysius Seraphim Hosanna - or just CASH.

Good books available as soon as I have made it up.

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Yes Ray ive been ahead of what the "Research" has been saying for the last 5 years.

For the record, here is another chilling prediction for anyone who is interested. The 1 in 4 figure will soon become 1 in 2 for PwP aged under 50 and taking DA's. Even my own Neurologist now accepts around half of his patients aged under 50, have experienced significant OCD side effects from DA's. He openly tells me some of his collogues still have got their heads in the sand on this issue.

Its a complete waste money carrying out more research into "better understanding" the link between OCD and DA's. If anyone wants to better understand the link, then look at the link between taking cocaine and OCD behaviour? Dopamine Agonists stimulate the same brain receptors as cocaine! Its not more research we need, its ACTION to get some accountability in place to protect us from those doctors and drug companies who fail to correctly warn us.

They probably thought

"good point, well made" and then trotted off to google to see if they can qualify for council tax relief on their new found religion."

If they are anything like me when I was first diagnosed (wish I knew the short way of saying that) dxgnsd - something like that - anyhoo, they will be trying to get on with it and hoping something turns up, like a cure.

In the meantime the drugs are good at managing it, have an issue with one kind. But their on the case.

Research done, pub.

A fellow pwp or carer who's looking for answers as to why the 180 degree personality changes will be grateful there is a reason behind it and an answer.

Actually falling on my coccyx is by far and away the worst thing that I have encountered in my 9+ years dxgnsd with pd. I don't mean to frighten anyone, but it's not just people with pd who fall on their coccyx it can strike people at all ages with absolutely nothing wrong with them.

Anyway in my church, as head, i have Ecky Infallibility. So to say critize any of wot i just said amounts to heresy.

Hi,

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Surveys are surveys,you can do a thousand and get a different result every time.Statistics are numbers on paper which can be misleading.How many people have OCD traits and habits without DA,s,i personally know many.As part of a survey this would be included in the statistics,something which is already inherent in a large percentage of the population not on medication.
This fixation with figures is scare mongering.Stamp collectors,car boot sale fanatics,women with massive shoe collections,anything that involves collecting which may be classed as obsessional/beyond the norm.It is already out there.Don,t blame all obsessional traits on the DA,s.There again some people have motives don,t they,manipulating the whole DA debate to their own ends.
Well i can see it,it stands out like a sore thumb
All the best
Titan,Tincan,slum land man.

I can't understand why the PUK Administrator don't set up a topic on this and put a sticky on it so it remains in the forum eye ~ surly this would solve this problem of constantly resurrecting the topic and old posts being constantly repeated????

I also think more awareness needs to be raised when pwp are first introduced to medication and the different drug options are discussed. The times I have read through the forum and newbies are not aware what type of drug they are using. Neurologists/PD nurses should make this their first port of call when prescribing drugs. The patient is often too overwhelmed by the diagnoses to ask such questions and place complete faith in their support team!!

The DA's don't need banning, they just need to be understood and monitored.After all if taking a DA could cause you to grow an extra nose or a nipple on the end of your nose, you'd want to know wouldn't you ~ how awful would that be? Sorry I'm being flippant but...

What about a DVD explaining the different drug options available and possible side effects. When a load of info is thrown at you to read often it is not read and gets shoved in the drawer or recycle bin! Would people be more likely to watch a DVD?

Just some of my thoughts, one's I have had repeatedly over the past few years. Nothing changes. It's the same record over and over again and unfortunately people will not stop being diagnosed with PD ~ they need to know about side effects, it is extremely important!!

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For those who do NOT fall foul of their side effects - particularly OCDs - DAs are incredibly good at dealing with the symptoms of PD, and play (and should continue to play) an important role in improving the lives of thousands of PD sufferers.

When you say "With it becoming increasingly obvious that the general push of this whole debate is towards banning DAs", to whom is it becoming obvious? Not me. As stated above I am strongly in favour of them remaining for as long as patients want them.

I see my own mission as being one of (a) ensuring that EVERY newcomer about to be offered DAs is made FULLY aware of ALL the possible side effects, and shown all the latest statistics, and (b) helping those currently or previously negatively affected by DA-induced OCDs. Some of these will at the present time be unaware that their behaviour is being seriously affected by the DAs; others will be in denial, or in so deep that they know what's happening but either (i) have had all willpower destroyed by the DA, and CANNOT get out, or (ii) just don't care, because the drug has convinced them that they're enjoying themselves.

Despite your assertions, I have no personal interest in the compensation issue. I have no funds to go to law, and have probably passed statutory time limits anyway. Apart from that I could never go through all that courtroom stuff again, it would probably kill me this time!

As for the 1 in 4 figure, blueeyes47's original prediction was based on those in hiding or in denial being tracked down, and their numbers being incorporated into the stats. In reality the authorities have revised the old 1 in 7 figure to 1 in 4 ANYWAY, without taking the missing "blueeyes47 groups" into account at all.

So following this through to a logical conclusion, it's probably 1 in 3. From now on I will probably quote "at least 1 in 4"

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Take care.

Ray.

Quote by Titan "How many people have OCD traits and habits without DA,s,i personally know many.As part of a survey this would be included in the statistics,something which is already inherent in a large percentage of the population not on medication. "

When one really thinks about that one fact alone, one begins to seriously wonder how much is blamed on medication and a persons real state of mind before taking meds is ignored.

Good post Cutiepie, often wondered why the powers that be dont just do a sticky and have done with it. Then anything else posted is moved into the relevant sticky or deleted.
But that would be too easy and less troublesome..........


Hmmmmm.......less troublesome ?

titan,

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I am not going to bother responding to all the points you raised in your post other than to say, please direct your anger at the health professionals who produced the statistics/figures and not me!

Thank you