posted it twice

Thank you Krugen for posting this.

I have found so much support from everyone on this forum and have been very grateful for it.
New people joining this forum are looking for advice and support when they are still reeling from the shock of diagnosis. Do they really need to fall straight into an argument?.

Everyone is entitled to an opinion but sometimes we have to agree to disagree.

We all need to know the risks of DA's but they have been wonderful for me!. I am no longer in pain and my tremor is almost unnoticeable. I will be looking out for signs of worrying behaviour (as will OH)so than you all for your opinions.

Caroline

Krugen: I agree.

Titan:

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For your information my current wife (the first did a runner at the first sign of OCDs, remember?) suffers from osteo-arthritis, rheumatoid arthritis, Wegener's Granulomatosis and Churg-Strauss Syndrome. She is having various joints replaced (very carefully, given her problem with rejection), and several internal organs are in a pretty sorry state. She cannot get out of bed or down the stairs without help, and must self-inject her medication daily. Her condition is far worse than my own, and she is being seen by FIVE consultants from different specialties.

So don't talk to ME about others' problems; I am very well experienced in holding my wife's hand, thank you.

Have a good weekend,

Ray.

Oh well, at least my fingers are getting plenty of exercise on this keyboard!

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Hi Ray

I think you are right to open a new dedicated thread on this subject under the treatments section. I noticed since the last thread disappeared into the archives of this forum, postings mainly from newbies on the subject have been popping up in other parts of the forum.

Ray some of your stories about your own experiences hold no punches and make for uncomfortable reading. However they do expose the dark side of what can happen with this medication, if things go wrong. I like many others have been a forum member for a number of years, so can honestly say i know your story backwards. However that is not a request for you to stop, far from it. Over the last couple of years i have lost count of the number of newbies who expressed their gratitude for you bringing the problem to their attention. Without you keeping it in the spotlight, i feel sure many would of just prolonged their suffering.

Maybe the day both Ray and his "warning band wagon" can finally retire, is when ALL neurologists and drug companies raise their game.

What is it with certain people wanting to try and cause so much trouble! It seems to me that these are the people who have not been involved in any compulsive problems, hence the negative reaction to the helpfull warnings.

I have just been reading an old thread called "Catastropic Compulsive Behaviour" on this forum. It is very relevant to the theme of this thread, and has some chilling tales of poor victims of compulsive behaviour, caused by Dopamine Agonists. I would advise newcomers to read it. Take care (much care). Carole

Those of us who have been affected in a negative way by DA's are not trying to scare people but to help them be aware of the negative side of the drugs. I do not want others to go through what my family have had to endure, therefore I will continue to advise caution and ask newly dx pwp to closely monitor their behaviors whilst taking DA's. When the are suitable for a pwp they are brilliant, but the dark side creeps on soooooo slowly and insipidly that one must always be cautious.

Hi.

The thread Carole talks of can be located most easily by going into "Search" and simply entering the word "desperate" into the "Posted by Member name" box at the bottom. Then hit "Search".

If you trawl around there are quite a few threads on this topic in various sections, with assorted headings. Sometimes US spellings are used, e.g. "Behavior".

The purpose of THIS thread was to try to keep everything in one place.

Oh, and congratulations to blueeyes for predicting that the "at risk" figure would rise to 1 in 4, eight months before that exact figure was officially announced!

Ray.