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Dopamine Agonists and catastrophic Obsessive/Compulsive Disorders (2)

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annebernadette

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2218 posts

Posted - 02 Feb 2012 12:03

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Tank you very much Bogman for taking the time and trouble to attend the conference, and to report back to us.

Radar47

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2974 posts

Posted - 02 Feb 2012 13:09

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I second that AB.......thank you Bogman.....xx

annebernadette

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2218 posts

Posted - 02 Feb 2012 13:16

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Thanks and threes are dificult are difficult , amn't they?

blueeyes47

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654 posts

Posted - 02 Feb 2012 14:12

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Hi Bogman,

Thanks for keeping us all updated. I also believe there is a relationship between DA dosage levels and the severity of impact, its a pity not all Neuro's and elderly care physicans understand that! The more time i spend working on the awareness campaign, the more shocked i become. Shocked by the vast difference in outcomes for patients being treated with DA's. This is still the case even now in 2012! The two key factors that keep coming up again and again are, high dose and poor health professional care equals big risk. Maybe we need to start putting a " health warning" label on some doctors as well as the medication.

However by June this year we will have ensured every unaware Neurologist and elderly care physician has been made aware!! Also they will be working to a nationwide medication management best practice in prescribing, managing and getting the best outcome from taking DA's.

On a separate point, we had the biggest ever coverage of Impulsive/Compulsive behaviours (ICB's) featured in the latest edition of The Parkinson Magazine. The response to the article has been overwhelming and certainly achieved its objective of raising the profile of ICB's among health professionals as well as PwP. Full details of this will be available next week when the ICB awareness campaign update goes on the Parkinson's UK website.

Regards
bluey

Cutiepie

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1085 posts

Posted - 02 Feb 2012 16:37

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Excellent news bogman and blueeyes! Look forward to the update.

Eck

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907 posts

Posted - 04 Feb 2012 09:28

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Get them telt bluey.

Eck

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907 posts

Posted - 04 Feb 2012 09:42

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Thanks for the hankies AB.

Are you sure you dont want them back. I just had a dab at either eye and a toot or two, followed by a honk, their still good though. (I have narrow nasal passages you see.)

glenchass

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810 posts

Posted - 04 Feb 2012 11:13

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Please feel free to correct me if I'm wrong! This research cost Parkinsons UK a hell of a lot of money, as Bogman points out, but isn't it just telling us all what we have known for a number of years and certainly before 2008.

Whilst I am very grateful that at long last this issue is being taken more seriously, I do feel that this part of the information has simply been regurgitated from another source.

It seems to me that this is same sh..t different day!!

I just feel that Parkinson's UK could have gained that information from it's members, however perhaps I should not comment until Ive read the full report. Can I ask the mods how long we will have to wait for this please?

ali j

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4478 posts

Posted - 04 Feb 2012 12:04

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the things that are pullin me through my probs with money ,is that my carers when i go out have my money ,not me,my daughter has took my visa csrd off me stoppin me from spendin on line and sky tv.im havin councillin ,done by my gp,and puk helpline has been marvolous to me,all of these things even if i did not like doin at the time,is helpin me,and im very grateful to all of them,to pull me through,im gettin there smile

ray of sunshine

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4230 posts

Posted - 04 Feb 2012 20:08

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Those PWP who are seriously OCD will not be controllable, as they'll get funds from absolutely ANYWHERE.

E.g. banks, credit cards, loan sharks, theft, fraud, selling everything they own, or owned by others.

Whilst DA/OCD I lost my house and everything in it. Plus hundreds of thousands of pounds, mostly defrauded or stolen from others. Needless to say I ended up in the Crown Court.

Take care.
.