Hi Johnboy,

Thankyou very much for the info. I started taking the meds yesterday so I'll see what happens. Don't suppose you know whether you can also take co-codamol at the sametime. By the way what is hot foot?

can anyone help me, my husband has PD and is also a Diabetic, his feet are always cold. and his legs. I was thinking of getting him an Electric foot wormer, has anyone ever used these things and are they ok for Parkinson's and Diabetics.
thanking you in advance.

Hi Marion , Glad to hear you have started the meds.Hot foot syndrome is a condition which any one can get (not just parkinson's).I get very, very hot feet when I go to bed.I have to get up to let them cool down.This happens every two hours all night.It seems there is no cure.It's a real pain with the parkinson's.

John

Hi Johnboy,

Sorry to hear about your feet problem, isn't there any treatment you can have? I normally wake up after a couple of hours sleep and don't seem to need any more. So I normally am on the computer to while away the time. Have been taking the meds now for 48 hours and seem to be ok. Fingers crossed.

Hi all,

Have now been taking Gabapentin 100g x 3 per day for about 9 days. Unfortunately I don't feel they have made any difference. Am considering knocking it on the head. Any advice from anyone. The pain feels even worse. Walking seems worse as well.

Hi, just feel I had to put this in writing. After enduring 6 months of nerve pain in my back and down my leg which was totally debilitating, I have at long last got results. I take my hat off to my PD consultant who is the only one to help me and give me the correct medication as well as my PD meds. I am now taking pregabalin and naproxen plus lansoprazole. The difference is amazing. It would seem he now has to do the GP's job as well! My GP was useless, I have to fight to get meds and
treatment. When I asked to be referred to a back specialist, the answer I received was "I don't want you to be disappointed" so not yet.

When I think of the pain I have put up with because the GP would not co-operate for whatever reason, I am so angry. Is it money? To be at the mercy of finance is very frightening, especially when GPs are supposed to have more power. What has happened to the NHS, I thought the medical profession was there for the wellbeing of the patient, not to play power games with someones health.

Hi found this very interesting. I take 200 mg and Requip xl 14 mg plus celebs for nerve pain. My consultant is now switching me over to Gabapentin instead of the Celebrex. I'm worried about the interaction with the pd drugs. My other issue is do they make you gain weight. I've read they they can cause severe weight gain in some people. Has anyone with pd noticed this? I'd be really interested to know before I start to look like a beached whale.

Kippersbear

Sorry you last post came up as I was typing. So my post didn't relate to your GP experience. I'm sorry to hear you've been in pain for so long. I hope life begins to look up again for you.
Good luck on the new drug regime
Kippersbear

A year before my dx of PD, I suffered with a lumbar scoliosis for about a year. Gabapentin was no help whatsover. None of the powerful painkillers helped either. The only thing I could do was sit or lie down and the pain would subside, but I couldn't walk across a room without excruciating pain. Finally I was operated on and a week or two after the operation, all pain was gone. In fact, immediately following the operation the pain was minimal. I hope the drugs work for you but for a scoliosis, I would get the operation.