Hi Ali

I second everything that Chunky has said, we can't all be 'perfect', and it would be a boring place if we all were, rejoice in being different, it does take all sorts to make this world of ours - keep up the good work.

Mike.

thankyou mike xu deffo rite bout me being differentthe thread name is copeing with parkinsons.and i guess cus wot has been said bout me agin ,has brought to mind by people responses that people have feelings for one another and care bout there pd collegues.anxerity is a huge part of pd as your aware of things hurt our feelings more ,we find things harder to cope with,causes inner tremors and outer tremors to be lot worse,and so on.its a lesson to be learned.panic attacks with pd can be awful feeling,standing in a shop with your purse open payin for your shoppin,people behind you in the que,sighing cus u takin a long time to pay and pack,causes panic,stress,more so than we used to before pd.i have found having pd has made me more vunuable,i seem to wont to trust people alot more and be looked after.pd does strange things to our minds and bodys,when we say to some one we have pd,they think old person shaking.im so glad there is more info out there,making parkinsons being aware now,having the people out there to care,and have more nollage of pd,im thankful to parkinsons uk,for all the hard work that they do day in and day out,bringing people togeather ,resurch,and surport.looking for that cure we all desprestly would like.thankyou puk

Dear Alij,

I am so sorry you are having a difficult time and are so upset, I am afriad being a relative new member I don't know about certain problems people on here have had, I do know that living with my husband with pd for all these years and being disabled myself and getting older makes you feel more vunerable.
Everyone with pd or another condition has a huge struggle even though we all try our best to live life the best way we can, for ourselves and our families. I make many mistakes and forget to do spellcheck sometimes but I suppose because we all have so many other problems they become less important and I know I do write as I think and don't always make sense but the heart is there and to me that is what matters. Please keep posting and don't worry you contribute a geat deal to the forum so keep it up.
Have a good day if you can
best wishes
vivian

well said Chunky . jonta .

Hi Ali,

sorry to see it looks you have been got at again about your spelling mistakes, you have explained before that you have dyslexia, I can always understand your posts and find them interesting, mostly they make me smile but sometimes they make me sad espescially when I join the thread and see that others are being disrespectful to you. You are unique and I for one look forward to your posts please continue to post.
take care

I entirely agree with Bethankit . I feel sad when people are disrespectful to you , if i need help i always look for Ali J . jonta .

What is the motto keep moving . Keeping moving in any way that you can . whether walking talking writing etc etc etc .

COMPARE . It's what we all do on occasions but with any illness we shouldn't . ESPECIALLY PARKINSONS/STROKES FOR INSATNCE.

I haven't got Parkinsons but since my husband was diagnosed , and joining site such as this one have made and met other sufferers . I don't use that word lightly .

Illness is a great leveller . My mum had a really bad stroke and eventually ended up in a nursing so I do know what I am talking about ..

It was the same week that my mum died after caring for her for 20 yeARS that my husband was diagnosed

I also understand that evryone has different abilities and are different ages

Please excuse the errors . I am typing this at the same time as I am having my lunch . It's the only SPARE time I have , I have let my husband have a sleep and the Dam! smoke alarm has now just gone off and woken him .

Anyway got that off my chest and am finishing my lunch before I go and see to my husband

Hopefully he will be refreshed enough to be able to go out with me this evening . Not sure about me though lol

I worry alot and try to live by this saying


God grant me the serenity to accept the things I cannot change
Courage to change the things I can
And the wisdom to know the difference.

everyone who has posted on this thread,i would just like to say thankyou,reading the posts brought tears to me,but in a nice way,nowing we are all here for one another and thats wot it all about,its true wots been said we all different,we are not all perfect,the community on this forum has built a family,but a family which is holding out there hands to welcome more,and surport more,its wot life is all about.having parkinsons has changed me,and i no it has many other people,we may be sufferin in our own ways,but our hearts are gettin warmer to one anothersurport groups may not be your thing,but they do connect people togeather and understand totaly wot your goin through.learnin to cope with stress can be very challinging and frustratin,but remeber stress can worsen some symtoms of pd,tremor etc,speakin to a nurse or a dr or even if it gets server a mental health team.last year i had a break down i thought the hole world was against me,and truthly dint wont to be here no more.i had one friend though who came to me ,who i trusted with my life,he has pd also,he was the only person i felt i could talk to.after many weeks ,he finally got me to see sence and see a dr ,councillin etc,i felt ashamed of me self why this had happned to me,but i had no control of wot was happinin to tome.there was people out there being so horrible to me,makin me feel i was worthless,and i became to belive it,i had started to self harm my self,i may look back now and laugh and say u stupid stupid girl ,wot the hell was you playin at.but at the time,if you get that low,deeper and deeper in to deprssion.it just happins.the dr and coucillin,over time made me relize i am worthy to be here,even if i had pd,i still had alot to give to the community.they truned my head agin.and im gratful to all of the people who helped me at this time,they told me that pd,anxierty levels had played there part in all of it.but im here now and fiting agin,relgion gives peopledeeper understanding of there disease,helps erm beter to cope with the symtoms.i dont no if there is any relious members on the forum,but if there is im sure you will understand were im comin from.stress can come in different ways,phisical and emoutional.the most important thing is however the pd worserns,tremor etc,is to try and focus on stress managerment and relaxin in your daily life.try not to let the pd take over,your in control,try to be grateful for everyday we have.