as we no parkinsons is a progresive disorder,and it effects all of us in different ways,with our movement,medication i found is nessacery.we can mantain a healthy lifestyle though by eating a balanced diet and exercising.i no it can be challenging for us and also others around us like our children and husbands and wifes,and friends,it can bring worries and stresses.i found early treatment is best even if symtoms do no interfire with daily life just yet.sinemet is nown as the gold standard medication,our brains use the levodopa to produce more dopamine,which is lacking in parkinsons.more dopamine helps the symptoms such as stiffness,tremor,slow movements, walking and riting.regular exercise increases power of the nerotransmitters in our brains and gives us positve thinking.regular exercise relives our muscles tension which can build up in our bodys.steraching exercises is good flexerbility,for good balance and posture to.seeing a nutrtiost,or a dietiation can help as well.they can make a food plan for you.water is very important as well,drinking between six and eight glasses a day.fibre will prevent consitpation and provide vitamin c as well.to help from falling around your home lift up any loose rugs you have.dont use stepladders or stools to reach things down out of cuboards.have hand rails fitted on your stairs.warm baths will help relax your muscles.install nite lites.satin bed sheets help to makes it easier for movement in the bed.dress sitting down, not standing and always were shoes or slippers.these are a few things that i have found that have helped me cope with parkinsons,theres one main thing though i forgot is talk to people let out your feelings ,dont keep them in,i have found there is many people out there with nollage to help,good luck to all pd suffers x

it would be nice if some other members of the community rote how they flet about copeing with pd,or some ideas that helps them

As a member of this forum for over 3 years, and on occasion having been ticked off for (for example) the improper use of capitals, I feel the moderators could themselves carry out at least a modicum of quality control on incoming posts before they appear on the forum; which, we mustn't forget, is visible to the whole digital world.

[ This post has been edited by the community team because it does not comply with our terms and conditions. You can find our terms and conditions here: http://www.parkinsons.org.uk/forum_policy ].

Hi Ali,

In response to the criticism of your post, all that would be required to help the readability of your post would be an extra space after the full stops and commas. Ideally the next sentence should start with a capital letter especially as the full stops don't show up very well but that requires an extra bit of coordination and it probably takes all your effort to type anyway. I am lucky to have been taught to touch type and that my sinemet restored my coordination. I have to say I had no trouble reading your post. As regards the spell checker, I have just deliberately mispelled the word "expert" as "expet" but the spell checker ignored that and took a dislike to my use of the word "Ideally" so it might be of limited help.

Best wishes

Regarding ways of coping with pd.:

I am sure that we all have our own indiviual ways of coping with our own individual problems. Here are just a few things that I have found of help:

1) Putting a strip of white (or any bright colour of your choice) fabric in doorways - obviously well fastened down, preferably professionally. Or even painting such a strip. For some reason I find that this helps to avoid me "freezing " in a doorway. It seems to be easier to step over something rather than to try to continue to shuffle through with the risk of falling and/or panicking. Especially helpful I find when needing to visit the bathroom at night time.

2) The use of certain aids such as a "one touch" jar opener, a kettle tipper, a very long shoe horn (available from several sources. An O/T should be able to point you in the right direction)

3) Velrco as opposed to zips, buttons or laces. And these days this does not automatically = frumpy

4) Small, frequent meals as opposed to the tradional breakfast, lunch & dinner. And not feeling the need to be tied down to definite mealtimes

5) But most of all, accepting that there are certain things that I can either no longer do with the speed & efficiency that I previously was able to achieve, not being too proud to ask for help and to appreciate that I may not receive that help exactly when and how I want it.

Hi Ali

I' m used to being 'in charge' if that's the right way of putting it, both in work, and probably at home, and I must admit that I now find it somewhat difficult coping with people doing things for me, that I could so easily have done myself previously.

I find now that I can't always deal with pressure and getting things done 'in time' anymore, and little things like being clumsy and knocking things over, and I feel ' wow this isn't me', but of course it is me 'now' and that is sometimes difficult to cope with.

Walking is the biggest problem as I have bad freezing and balance problems and not being able to walk far is a problem, but I have learned to cope with it and just do things in my own time - my new time, not in my old/previous time - hope that makes sense?

My feeling is that we have to cope with what we've got, and we can't give in to it -- but, we all do it different ways, and what's good for one may not be so good for another, but it doesn't matter - just 'fight the good fight'.

Regards,

Mike

thankyou eileenpatricia,and annebernedette for your postsas for the post under mine ,im lucky i did not get to read the post before moderaters removed a section,but by the response of eileepatircias post im guessing its yet another post about my spellin,and i will say yet agin i carnt spell well,im dislexlic,i dont see wot the prob is,im trying my very best here,and lots and lots of other members have said to me ali just keep goin you doin well,be you,and iam.i will just say that first post of mine took me just over a hour to rite,it took so much out of me,my hands and fingers hurt so much after,and my head had it by then,i rote that post cus it how i felt,i thought it would help some people and some people would feel they wonted to rite how they coped with pd.when i woke at half four this morning i felt not to bad,i came on forum to have a nice relax ,a look about and a few posts,ive enjoyed doin this for a long time.but now how do i feel agin?pigged off im bein digged at about my riting by the one and only same person who just dont likes me,ive had this rottern disease for 11 years as you no,and you no how hard it can be to press keys ,etc.and anyone who has dislexlic will no how difficult it is to rite.yet agin this post has took me ages just to explain once agin about my spellin,if i affended anyone ,im sorry,but please try and respect me feelings a bit more ,thankyou

annebernadette,thats a very good idea about the strip in front of the door way,i understand were you comin from,we freeze sometimes goin through doorsand mike,you have said it all,
[do it in our own time,not no ones else,]you have hit the nail on the head

Hi ali j

Reading your last message just made me feel sad that there are those out there who have nothing to do except to be critical of others. Crikey, having pd is bad enought without having tzo snipe at someone over sspelling mistakes. After all we are not all Professors in Literature. Just plod on as your doing, I dfor one find your messages interesting and informative. Keep up the good work.
regards
Chunky

thankyou very much chunky x