Hi i haven`t been on the forum for a while mainly because i keep feeling quite confused. Don`t get me wrong i really enjoy reading all the comments and interaction but i feel the more i know about parkinsons the more i worry.

I was diagnosed nearly 3 years (in Aug) and have felt quite positive, i did lots of research on my symptoms before dx but since them my consultant recommended that i didn`t. I constantly think about the future, am i getting worse, what new meds will i have to take, possible side effects. I know this is natural but i reckon not knowing kept me sane! I feel so lucky my pd isn`t as advanced as some and i can lead a good life,i still manage to do every day tasks if not slower & i`m taking control of my anxiety at last (with the help of medication). I just wonder if any one else feels like me? is it best to be prepared or is ignorance bliss?!

Big C

Hello big C

I think it has to be better to be prepared, despite the pain and anxiety that means we have to face.

I know that att some time in the future there will be some difficult decisions to be made about my life, and if I want to have a say in all of that, AND I DO, then I need to be informed, I need to be able to present my arguments and reasons.

Best of luck (and keep your powder dry)

100% agree with Mosie.

The more you make yourself aware of the condition the better informed decisions you can make (IMHO).

Regards

007.

I know exactly where you're coming from Big C.
I love the forum and read it for a long time before I actually registered and started to contribute.
The people on here are, to varying degrees, well informed, friendly and often very witty. At first it was a relief to find people who know exactly what you're going through but as time has gone on I have become more aware of the situations of other pwp, further down the line than me. I have to admit it scares me.
As you say, would it be better not to know? I don't know the answer but I do know whatever comes to me it will be made easier by the fine members of this forum.

I keep as well educated about PD as possible, not so much to find out what lies ahead but to help GP's and other medical professionals that whatever currently ails me is or is not PD related.

I've read up on all the symptoms but these drift into the back of your mind and you just get on with what your doing. Despite the knowledge when another symptom arives it still comes as a shock. At least you know your not going mad.

tap. tap. tap.

Whats that sooty. Tell the boys and girls, don't worry about a ting, coz every little ting is gonna be alright do do do do do.

No I don't think I will sooty I'll leave that to Bob Marley & Cockney Rebel.

What's that sweep.

"Wheep Wheep Wheep Wheep Wheep Wheep Wheep Wheep , Wheep Wheep Wheep Wheep Wheep Wheep "

Never a truer word spoken. Lets not forget it.

Bye bye everybody bye bye.

these truths i hold dear:

knowledge is power
truth is beauty
sooty is 64
he was sold for 300,000 pounds in todays money
harry corbett played piano in his uncle harry ramsden's fish and chip shop

a glove puppet can earn more than a neurologist, in some cases quite rightly.

Hi Big C thanks for your message i was dx 14 months ago and come on the forum now and again i get very confused a lot of the time and think its better for me to see my pd nurse concerning meds and treatment, Like you i feel ignorance is better sometimes Take care chris 46

Not sure how sooty got involved?

Is it me or does anyone else feel like they are on a different planet?!

Thanks everyone for your reply`s, its interesting to hear your thoughts on this serious subject!

C

Hello Big C, I think that if more and more 'knowledge' makes you anxious then its not good. Thinking ahead and imagining the worst things are going to happen will make you more and more anxious and then those things will happen.

My h has lots of difficulties because he is blind as well as parkies and has a bad back like bones being out of place and because of hallucinations he takes limited medication BUT he has a good positive attitude, sometimes veering to stubborn. He is determined to put a brave face on, make light of it and tries to keep his thoughts to here and now. The neuro told him he is doing really well despite his difficulties because of his attitude.

I think it is really important to just go day by day. and remember that everyone's parkinsons if different. I think in the future they will have many different categories of it, some do not progress very fast at all.

love Sunray

Hi Big C,

I agree with you, I like to just try and keep a balance between knowledge and ignorance, I think my husband prefers it that way as well.

Because we all have different symptoms and problems, nobody really knows exactly what the future will bring anyway, so why worry?