thank you neenag i shall speak to the doctor about that medication. and its so nice to hear you are having a good day thank you

chestnut I was on 400mg a day the max dose prescribed but I know people who are on 1800mg and are abusing it.They became addicted without realising and kept increasing slowly.
ali j Id love to meet up with you but I bet we live miles apart. I think we could be good friends. You are so brave and honest about your condition. What is wrong with your mum and what happened to your friend xxx

neenag xxx

oh by the way ...am doin me ouse werk

xxx

neenag,im far from brave in my eyes,if i dont smile i cry,emoutions can be all over the place at mo,but people like yourself with a bit of giggle in you makes me smile and keep me goin then,then i can push meself along to try and help others to.ive had a lot of hurt and pain in my past,and it dont seem to dry up,but hey i see it that i draw the short straw,and im not goin to bed with out the neenag with youby the way i live in shropshire,were they make mullier riceand have plenty of farms,pooo yeeeewell im off to bed neenag,i got speech therapist and dietian tomorrow at 10,so early start.by time i had show meds etc it takes ages dont it now to get ready,anyway i will be inspectin ur ouse werkfirst thing,nite everyone

night night house work done but bet i'll suffer tomorrow

neenag xxx

hi the doctor has told me to take my requip at night and given me 100mg of amantadine to take it in the mornings.hopefully this should lessen my fatigue.

watch this space

love neenag

Well! it worked!for now anyway.I take my ropinerol at night and 100mg of amantadine in the morning..if I could just get rid of a bit of pain life might be enjoyable againI can now keep awake during a conversation which is good because people were getting a complex they thought i found them boring hee! hee!

love neenag xxx

My husband suffers with very painful knees . He takes paracetamol as directed , they do not give any relief . Unfortunately he is on Warfarin medication and is unable to take anti-inflamatories. He tried Co Codamol but they made him confused .

Hi Neenag and everyone else. Fatigue, pain ,confusion, cramps, falls, insomnia - living is so so difficult at the moment.I have just returned from after about 10 days. I ended up there because I din`t know what was real and what wasn`t. I take stalevo 100mg levodopa, 25mg carbicopa,and 200mg entacapone. along with 8mg rotigitine patches ar night. The only pain killers I have are co-codomol and I take a sleeping tablet - zopiclone 7.5ng. whilst in hospiyal I was put on a drip 3 times a day containing various vitamins and minerals, mainly thiamine and strong vitamin B6. I responded well to this treatment , so now I will be taking them daily in tablet form. I go for another c.t. scan on Wednesday. I think I need more levadopa because my tremor is much much worse - the falls I`ve had recently have been pretty bad - cracked ribs, fractured scull and numerous cuts and bruises. I live alone - my husband dyed of leukaemia some 5 years ago just a year after I was diagnosed. I`ls been tough to say the least. Sometimes I feel that I cannot carry on much longer - I also take anti depressants . I have been reading about d.b.t. and wander if I would be suitable for this op. I really try to live as normal a life as possible e.g. exercise wise and diet etc., but it is so very very difficult.I notice in a previous post that you take codramol 10/ 500 which is good for your pain and I`me thinking about asking my consultant if maybe I could try them. The cramp in my feet makes them go all sort of claw like and the last time I saw him he prescribed clanazipan - they do nothing to help - sorry to go on and I wish you and everyone all the best. Love Speedy. Any tips would be appreciated.

wow speedy! lot of medication going on there. how long you been dx and,if you dont mind me asking,how old are you? I am 52 and dx in 2010 but symptoms started in 2004.sorry to hear about your falls. do you have a carer coming in to support you and do you have a social worker. also have you seen an ot about adaptations to your house to help you be more independent, and do you have assisted technology in your home? I ask these obvious questions because you would be surprised how many people just carry on .

love neenag xxx