well thankyou to all for being so open and honest about this problem. many subjects seem to be taboo,,off limits etc...but because of my field of work I am able to broach difficult subjects openly. your responses have been extremely helpfull so thankyou again .


neenag xxx

I was having a problem with urinary urgency. I was always on the verge of disaster, however spotting my trousies was aa common accurence.I did have full blown incidents to begin with, but watching my fluid intake and going whether I neede to or not seemed to manage the situation. It wasn't ideal and I wouldnt attend family functions for fear of a disaster. I sppke to my ex GP who said "Its probably your bowel pressing agaimst your bladder. I dont think its your parkinsoms, it does'nt affect your bowel or bladder if I remember correctly from medical school. It wont be your prostate, at 45 your too young for that".

I got meds from consultant, but this caused urinory retention so I stopped that.

So I shunned away from public life, dashing to the loo at the hint of something kicking off for well it seems at least a year, could be two.

Then it happend. I was always going to the loo 4 or 10 times a night. When one night at 3am I had a gargantuan eh movement, although there was nothing hrmonic about it (however I did reach a high C a couple of times).

I went again at 5am - Nothing
6am - Nothing
6:30 - Zilch
6:45 - Hee haw
you get the idea
By 8am my back teeth were floating...
No need to panic. I'll go imminently. I'll take my meds and whoosh.
9am starting to panic. Phoned new doctor for what I thought would be for a number 1 laxitive or some such.
Told to go to A&E they would be expecting me.
11am was asked by nursy to come through for some questions.
Taken through to geriatric area.
Time passes, nursy comes with machine which will tell them how full my bladdder is. "Oh yes, about 2 Litres. Have you ever had a catheter before. No. I'll just get a doctor"
More Time passes.
"Just waiting for a doctor who can fit a male catheter"
More time passes
"I've just spoken to doctor and told her your bladder has 2 Litres of wizz and she will fit it"
I think I smiled, I dont think my face wore that expression.
Time passes
Doc arrives. Did I want anyone in with me while she carried out the procedure? I thought "No if your going to abuse me get on with it, just get this stuff out of me before my kidneys explode" I said I didnt.

Job done,

Got it out after a month. Back to my urgent little and often ways.

However major disaster every night at least twice.

Saw urology nurse who gave me sheath catheters and night bags, job done.

I could have made this a lot shorter (wished I had)(probably would have had I had to go potty)(well I did and I didnt if you know what I mean)(I'm going to leave it there)

thank you for sharing Eck.
2 litres!!! you could play football with it. my dad recently had a very similar experience. now seems to have gout, presumably something to do with all that uric acid.
I always wear black trousers, even in hot weather. Doesnt help that the pee is stained red.

Thats a brill idea. Mrs Eck was going to sponsor the match ball at a Rangers match in memory of me after I choke me last, now I can actually BE THAT MATCH BALL.

On a serious note ... steady now ... steady. I can be serious.

Where in the name of the wee man does 4 pints come from during the night?

Am I nocturnaly dehydrating, is that whats causing my PD?

i am actually over-hydrated due to side effects causing oedema in the ankles and i suspect in more serious places. water tablets release huge quantities of water.
too much... too little ; all i can say is i a p@ssed off literally and figuratively.
but i have to doubt pd is caused by water as that 'cured' naturopath seems to claim. perhaps your water is lurking in tissue somewhere?

my bet is pesticides... but more on that later.

on a slightly related subject i am struck by the resemblance of De Bortolli Liquer Muscat to the famed Buckfast, except if you hit someone with a 3l cardboard container it will have a disappointing result.

Hi everyone,

Very interesting reading this morning, what a state life gives us to deal with.
Just a note about bowel and bladder with pd, if you are constipated your drugs will not work so well so you should always keep everything moving, also my husband has really bad pain from his bowel side area when his medication is wearing off which makes him very agitated and quite stroppy until the meds kick in.
We were also told that pd does not affect these area's when in fact it is very common that they do, just ask a bowel man, not putting too finer point on it you should be able to go at least twice a day.
I hope you all have a good day.
vivian

Hi Vivian

ON the subject of going twice a day, I've recently started to do that, but I was regarding it as something worrying to tell my neuro rather than an improvement. I need to go about 10 minutes after getting up and being mobile round the house, this can be any time between 2--5am and then I go again after eating breakfast at about 7/8am. I thought it was decreasing ability to empty the bowel properly.

Anybody else willing to share?