Hi I've read a little on pd incontinence, It would be interesting to hear from others on this subject to see how prevalent it is...soooo..dont be shy!!!

if it isnt constipation its incontinence - the first is easy to cure (at least for me ) but the latter i have no idea what to do and the embarrassment potential is unlimited. Or greater. for me it seems to be a lack of ability to hold on for an length of time. seems to involve lack of control of the smooth muscle. can it be exercised?
your
getting increasingly worried

Weeeell as a post menopausal mother of 4, I didn't actually need Parkinsons...............

I find the problem is not having the usual signals of needing to go. I just become a serial loo hopper, if there's a loo I'll use it, just in case! I've been told this is a bad thing to do, but wetting oneself in public would surely be worse.

hi i dont wont to worry no one,but i have a supa pubic catherter fitted cus i lost control of my bladder,but reason i not wont to worry no one is it obversley dunna get this far for every one.with parkinsons mucsles are weaker all over our bodys,and this involes the blader mucsles as well.7 years ago i was havin probs with me blader,i kept dribblin alot,enough to were pads,then time went on and i could not get to loo on time,then the flood began,i got sent to uroligist and was told i needed a supa pubic catherter put it.normally the bladder is off and relaxed while fillin with urine,but when the brain is alerted the brain signals turn to on and release urine.but with parkinsons loss of cells create the on and off problems ,for intance sudern urgency.wakin up in the nite several times.addominal cramps.treatments are avaible,if you are havin problems with your bladder,visit your gp who will refear you to a uroligist, ,diet can even help with urine problems,and there is medication also can help.all of these things will be tryed before it gets to as far as it did with me.hope this helps neenag

no1s are one thing but no2s????????

Hi,
If you are not allergic to peanut, try some each day. Not the roasted. Monkey peanut is the best.
It helps me.
:)

HI ALL...is it just a woman thing or do men suffer aswell? I thought mine was just tooooooo many children but after reading up on it I realised it could be down to the dreaded parkinsons. As for weeing yourself in public ..hey!.. thats me I can never go out without a pad or I need to be near a toilet. I gave up coffee to try to help,,I dont have many pleasures in life and I love coffee,, I dont smoke or drink and I eat reasonably healthy. so I should be at the peak of fitness instead of a decrepit pder keep your experiences coming in .

love neenag xxx

Morning everyone,

The dreaded problem has hit me for several years now, partly due to my back condition and because I can't do exercises and partly down to getter older. I have just been given some tablets called Oxybutnin 2mg three times a day, I will let you know if they work in a couple of weeks.
Several people I know use Tenna ladies or mens pads or pants especially when they go out, also and beds mats or a convene for the night, my husband didn't get on with the convene and you can damage the sensetive skin with the sticky stuff you have to use to keep it on, not a good idea chaps. Another sulution when you are out is to take a bottle with you that has a cap and keep it in the car, it is a lot more common then people think.
Alij has another solution which is used for quite a number people with MS as well
you just have to be careful you don't get infections.
If your problem is because of having children you can have a repair or speak to your doctor because there are other solutions.
best of luck with getting to the loo on time.
vivian

Oh what joy to know I am not the only one with this problem!!!! I've done the pelvic floor exercises, read the books, got the T-shirt, but nothing seems to work.
I must be Tena ladies best customer, I need industrial strength pads! This week I had an 'episode' where I went completely down the tubes!I have been diagnosed for 11 years and have coped pretty well up to now, so I thought, but I went absolutely NUTS for the past 7 days. Luckely I have a very caring son and his partner, who are both in the medical profession and they have been my 'rocks' through it all. I became completely introverted. didn't want to go out. didn't want to see or speak to anyone. I became unable to climb the stairs so slept on the recliner chair - not the same as being in bed, had completely slowed down so was unable to make it to the toilet, so any receptacle was used! couldn't stand to cook so just ate out of the tins or had a micro meal, in fact I turned into a complete slob! Luckily my son turned up and was abolutely appalled by what he saw. He took me to their home, arranged for me to see the Parkinsons nurse, came with me to the appointment and between us we told her everything that had happened to me over the past week. She too was horrified by my behaviour. and suggested a change of tablets, and a better eating regime, and has also arranged for a visit from tne Occupational Health team at the hospital, who have arranged with my son to come to my home next week to see what aids they can give me to get me mobilised again, I am also on a healthy eating diet as my weight has also ballooned! Suffice to say I have now got a better outlook for the future thanks to my son and partner. I hope this will give a bit of insight to one aspect of PD (Well two if you include the incontinence issue). So, Yes some days you too may feel like this. If you do I hope you will be lucky enough to have someone to support you through it, and even if you don't, please, at least try and get some help through your PD clinic, nurse, whoever. Once again - A Big Thank You to Warren and Andrew, couldn't have done it without you xx and to everyone out there with PD - yes you may drop to rock bottom - but with help you can get back up again. The waterworks won't stop but at least you can get pads from the Occky team, which will halp to save money if nothing else... sorry to have gone on a bit, but I wasn't aware this kind of thing could happen and probably a lot of you out there aren't either so if it happens to you,just know you are not the only one.. Thanks for reading this.

sorry I posted twice, and don't know how to get the 1st. one off.