Hi Russ,

I have kept on working right through. I work 60%, and that just about works, so long as I make it 60% and do not let the need to get something done bully me into working more than 60%.

Resting - I wad a sweater into a pillow and have a kip on the floor when I get tired. I have an office to myself, so that works. Don't know that I'd have the neck to do it if it were an open plan workplace.

Resting at night - I find paracetamol with codeine really helps. Doesn't stop the leg locking or the numbness, but it does enable me to get to sleep in spite of it, well, sometimes.

Going to work is however a major challenge for me. I am a mathematicians, and we mathematicians are all a bit vain about our mental acuity. Mental acuity? what mental acuity. My head these days seems to resemble cheese - a swiss variety at that. Owning up to cognitive limitations in the society of my colleagues gives me some intuitive feel for what it must have been like owning up to leprosy in medieval times. One colleague even moved his chair so that he wouldn't have to sit next to me in a meeting. Just makes you love to be there. Doesn't really help that I share their horror of my mental state. Alas, I cannot pick up my chair and move away from me.

Oddly, the kids (PhD students) are generally kind.

Even more curious, the creative aspect of mathematics is not at all dead, just the ability to handle the algebra to prove or explain it. John Milton knew and said it better than I can.

http://www.bartleby.com/101/318.html

Hang in there. Don't be bullied.

I struggle with fatigue and have developed the pro-active resting with out knowing it had a name!!

Please would Potplant put some more things they learnt from the fatigue management clinic on the forum. Meanwhile i will ask if I can go to this clinic. Where is the one you went to??

I guess pro-active resting is just sensible planning, but I hadn't really thought of it before as a conscious strategy. The clinic is at the National Neurological Hospital in Queen Square, London. But I don't think that it is necessary for a Fatigue Management service to be linked to a neurological service, as the advice is quite generically applicable.
As I remember, the other most useful things they considered (assuming that workplace assessments and adjustments were done, like chair, voice recognition software etc) were:
travel and commuting - looking at any assistance eg taxi scheme and employer assistance for travel, so subsidising taking a taxi rather than the Tube home if really tired;
planning days so as not to have both early and late appointments (my husband quite often has evening seminars etc to chair) or appointments requiring travel to different places in the same day - Commonsense again I know, but having taken for granted all ones life that all these things are possible, it really helps to consciously take account of the fact that they are tiring!
None of this is rocket science, but I hope it helps. All the best.