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DaveW
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65 posts
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Posted - 10 Jun 2008 17:21
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Here's mine (I'm sure you can do better)
Parkinson's
Parkinson's is hell
Though no-one can tell
The shaking arm
Can't make it calm
The bad depression
I ain't messin'
It slices me through
D'you feel it too
The drugs I take
Don't stop the shake
Then there's the nausea
I really tell ya
I wish I could turn back the clock
At life I wouldn't knock
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Leics.steve
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61 posts
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Posted - 10 Jun 2008 18:35
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Parkinsons
PD aint that good
but things could be worse
look on the bright side
you could be in a hearse!
I've got the shakes
and a limping right leg
but I'm not on the streets
having to plead and beg!
what I'm leading to say
Is try to stay bright
be positive if you can
You know I am right!
I hate this disease
and all thats to come
but i can still do things
and have lots of fun!
I've made lots of friends -
good ones who are true
I've done a big challenge
and followed it through
I've shed a few tears
but I still act a clown
Cos one things for sure
It won't grind me down!
Steve
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louiserebecca
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21 posts
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Posted - 10 Jun 2008 20:45
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I’M SICK
I’m sick of this b…dy illness
that’s changed me from who I was
Into a bent old woman
whose legs don’t work because
Her b….dy basal ganglia
isn’t pumping out the prompts;
that send the neuro messages
that set her feet to stomp.
I’m sick of being sleepy
with no energy all day;
With leaden legs and dragging feet
and a chin that just won’t stay
attached to my upper jaw
but wants to hang and sag,
And make me look like what I’m not
a crabby dull old bag!
I’m sick of this new mirrored face
complete with stony stare.
I’m sick of struggling onto the bed
but not managing to quite get there
And clambering off to start again
to perform an easy task.
I only want to go to bed! For heavens sake!!
Is that too much to ask!
I’m sick of being positive
and hiding away my fears,
Pretending everything’s OK
– nothing nasty will happen for years!
Now is when it’s happening!!
Now is when it stinks!!
So B….Y!! B....R!! ....!! and ....!!
THAT is what I think!
louiserebecca   
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sid60
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299 posts
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Posted - 11 Jun 2008 05:41
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Pack up all my care and woe
Here I go, singing low
Bye bye Parky
Where somebody waits for me
Sugar's sweet, so is she
Bye bye Parky
No one here can love or understand me
Oh what hard luck stories they all hand me
Make my bed and light the light
I'll arrive late tonight
Parky, bye bye
Bye bye Parky
Bye bye Parky
No one here can love or understand me
Oh, oh what hard luck stories they all hand me
Make my bed and light the light
I'll arrive late tonight
Parky, ,Parky Parky bye bye
Goodbye,Parky
I'm gonna miss ya Parky
I'm gonna miss ya,
Ya hear dat?
I'm gonna follow you soon
Wherever you go, why I'll follow you
There's someone waiting out there for me, where you're leading
I can see you flappin' your wings now
You're calling me
I hear you calling me
I hear ya! I hear ya!
I'm coming! I'm coming!
I'm almost here
She's there waiting for me
Oh, how wonderful she looks
Oh how marvelous, Parky
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Cutiepie
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1085 posts
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Posted - 12 Jun 2008 04:50
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This poem is about how Parkinson's drugs can cause compulsive behavior, wanted to share it with you in hope it may make people aware of side effects that sometimes can happen.
As I search my mind a little
try to reconcile a little
I realize I'm not a lone
in this crazy weird Parky zone
sometimes the drugs mess with our minds
at the time we don't see the signs
of side effects these drugs can have
take us down a dangerous path
risk taking behaviors our game
and seeking rewards is our aim
let hyper sexuality
take us beyond reality
gambling, porn and sometimes chat rooms
can help to take away days glooms
gives us the thrills we desire
all this time playing with fire
some Parky drugs can bring us strife
but at the time we love our life
agonists dominate our day
putting temptation in our way
causing us to stray from our beds
'cus obsessive thoughts rule our heads
we have to seek advice before
we lose everything we've worked for
Cutiepie x
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bobbie
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Posted - 12 Jun 2008 08:35
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I've writtem ore, but these are my favourites:
HOSTAGE
Help! I'm being held hostage
And my body will not say
Exactly how much I have to pay
In fact it tells me nothing
it has declared UDI
Doing it's own thing
Stopping at a whim.
Not even the police
Can establish my release.
AMUSEMENT
Now that my life has changed
Life will never be the same
People I've known for years
Sidle away in fear
Afraid they'll be like me next year.
I have had enough
They can all get stuffed!
I don't care anymore
Slammed shut that vulnerable door
Well, you can't catch much from me
(Only a cold in the extreme)
But tell me, do you agree?
Should I carry a bell and shout unclean?
Sometimes it's how my Parkinson's seems
Nothing inside has changed
Just my body sometimes rearranged
So the question is, you see
Have you always thought that of me?
Bobbie
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Cutiepie
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1085 posts
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Posted - 12 Jun 2008 14:23
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Parkinson's as changed my way
compulsion dictates my day
not sure if meds are to blame
of how Parky plays its game
it gnaws deep within my brain
like a rat that you can't tame
rodent ways like to scavenge
rampent nature's a challenge
neuro' prescribed some new meds
still behavior rules my head
he's referred me to a shrink
in hope that he'll find the link
I hope i don't wreck his head
and i'm not taking his meds
let's hope that he helps me find
end to this torment of mine!
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sid60
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299 posts
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Posted - 13 Jun 2008 07:22
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I`ll probably upset a few folks, but you`re free to bring your
Own beliefs.
People talk of Parkinson's and side effects it brings,
And they are fully qualified they have the pain that pulls the
strings .
They will tell you of the agony,the gambling and the lust,
the degradation and the shame, the dreams that turn to dust.
The inefficient neuros, the doctors who don't know, the traveling
Tablet salesmen, who just make the numbers flow.
All these things I listen to,intently and with interest,and ask
myself can this be right,I`ve heard of no arrest.
My own association with this thing is not of pain or frown,
it seems to me its turns my very thinking upside down,
I miss out things,I mess up things, I just cant get it right,
And all the good friends i have made will soon take flight.
Some people in their quest to be, free from this abomination,
Will turn to Him who lives above to grant them their salvation,
but with my thoughts that fade away as quickly as they're made,
I say you waste away your time, the Masters gone away,
And who's he left in charge of us to torment trick and tease?
Why only Mr Parkinson, who use Gods Own Disease.
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sid60
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299 posts
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Posted - 13 Jun 2008 07:31
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Cutie, I think of you. Your words come screaming off the page.
sid
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sid60
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299 posts
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Posted - 13 Jun 2008 08:46
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One for Dotty.
Lord what are you thinking of,
To treat this girl so bad,
If you want to punish someone,
I`m your jack the lad,
Rain your anger down on me,
And watch me give a damn.
just curb your bully ways
And bring some peaceful days.
sid
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